This issue has been going on for nearly 5 years with my daughter, now aged 28. She has been seen by 2 neurologists, who ruled out MS. The GP said her B12 results of 350 were 'normal' despite that fact that I explained that I am unable to absorb and I have monthly injections and gave a family history. They did not do a antibody check for PA as her results were 'normal' although I said that this does not specifically diagnose PA. Her GP has now referred her to a Gastroenterologist, obviously a long wait in the current climate. I am not sure what a Gastro can help with?
I want to put together a letter for her GP to request a trial of B12 injections to see if her neuro symptoms improve. her original symptoms were loss of feeling in fingers and toes, along with optic neuritis. She now has a lot of hair loss, which I did too.
I also have purchased my own B12 and for a time did self inject, and would love to offer the same to my daughter to see if it helps her symptoms, she has refused this as wants it all to be done via the GP.
If I were to convince her to SI, then her symptoms improved, she could go to her GP and say this and in a way 'prove' her deficiency, any thoughts?
She does have B12 and spray too, which she told her GP she was taking even then the blood results were only 350.
I am crying myself to sleep at night now knowing she is suffering. it is her hair now that has finally pushed her over the edge!