Tinitus?

[jillcur39]

I know when I have b12 injections my tinnitus goes - but today the consultant told me that is nonsense and there is no connection between b12 deficiency and tinnitus. 'never heard of that from anybody' she snapped. Any thoughts??

[Diane57]

I dont notice any changes when I have my b12 injection. My tinnitus is there all the time

[clivealive Forum Support]

I just took a quick look at NHS Choices website on "causes" and found this:

Rarer causes

Less commonly, tinnitus may develop as a result of:

a head injury

exposure to a sudden or very loud noise, such as an explosion or gunfire

anaemia – a reduced number of red blood cells that can sometimes cause the blood to thin and circulate so rapidly that it produces a sound

Perhaps if you shot the consultant

Seriously though, I too have noticed that my tinnitus "comes and goes again" between injections and I've had P.A. for 45 years and tinnitus for at least 30 of them.

1 Pernicious Anaemia - Symptoms

1.1 General Symptoms

The following general symptoms are common in those with PA:

 The Strange Tiredness

 Fog days, where you have difficulty in thinking clearly

 Weakness

 Fatigue

 Upset stomach

 Abnormally rapid heartbeat (tachycardia) and/or chest pains

 Abnormal yellow colouration of the skin (jaundice)

 Heightened sensitivity to hearing, smell, and taste

 Vision distortion, e.g. seeing stars, or double vision

 Breathlessness

 Headache

 Cankers (ulcers) in the mouth

 Sleep disorders

 Intolerance to loud sounds, flashing lights

 Intolerance to crowded malls (needing personal space)

 Tinnitus – ringing in ears

Well whoever compiled that list had "heard of it".

[Diane57 in reply to clivealive]

Hi thanks for your help. I have ent app next week. Look in the paper on thur i might shoot the consultant lol

[Foggyme Administrator]

Hi Jillcur39. Yes, I agree with clivealive . Tinnitus is one of the symptoms of B12 deficiency (though it can be caused by of other things as well 😖).

See this:

b12deficiency.info/signs-an...

I have it too - constantly - not good, is it.

Your consultant is a B12 numpty.

👍

[Diane57 in reply to Foggyme]

Hi thanks for the link just had a look and the top of the list for neurological problems is tinnitus. No its not good ive had to go and see if the car alarm was going a couple of times last week the sound was so bad

[holehead]

Me too maybe we could all come along and tell her

😠Mark

[Hidden]

Just shows how little the consultant knows. If you research the internet there are plenty of information papers which agree with you, and so do I, mine gets much worse when I am ready for the next injection and much better after it.

There are very few medics whose opinions I trust without reservation. I was misdiagnosed with a condition for 7 years and when I went to see one consultant about this he told me he knew I had a problem but didn't know what was causing it and couldn't be bothered to find out. Fortunately I did find the ideal consultant and his attitude was this is making a very sick man of you let's find out what is causing it, I will not give up until we do and we did. Sadly he has now retired but I think he trained plenty of other guys to have the same attitude.

We must never forget though that our doctors are merely human and can be wrong.

[jillcur39]

what I hate is that my symptom was waved away with a flick of her hand...oh dearie me... I know what I can hear, and when I don't hear it, if you see what I mean.

[Foggyme Administrator in reply to jillcur39]

Know what you mean Jillcur39. That dismissive hostility that aligns you with all small crawly living in the dark things...and makes you feel lower than that. Just for being ill. For asking for help.

Dreadful.

Here's a hug.

And here's a thing...autocorrect altered hug to bug 🐜 and even gave me the picture...😀😄😀

[pvanderaa]

My tinnitus goes up and down. I don't know if it is nerve repair in the ears or the brain's interpretation of the signal from the ear that is damaged by lack of B12 and repaired,( if repair is even possible), by getting Weekly B12, and daily folic acid, B6, B1 and the multivitamin I'm taking, it remains stable and I hope repairs the nerve damage.

I also drink coffee and so caffeine also plays a part. I work in a noisy environment and wear ear plugs, so that doesn't help either.

I think my tinnitus is manageable but it is one of my marker symptoms that lets me know I'm getting too low on B12.

Do you keep a log book and try to score all your symptoms on a daily basis? Your own severity scale is okay. You will find your own marker symptoms.

I've found the logbook an essential tool to understand the timing of a symptom appearing / disappearing after injections or eating food/drink. There is a 3 to 48 hour delay is most cases because the gut in involved.

Once you identify a cause, you can understand/predict how your body is going to react. Then discuss with your GP and show the "evidence " from the logbook.

You will get fobbed of as a hypochondriac at first but remain calm and be confident that you know how your body is going to react. You need to train your GP like we all have had to do.

You probably need more frequent injections to even out the ups and down of the roller coaster ride.

[jillcur39]

thank you so much pvanderaa I shall start a log today. and thank you too Foggyme for the hug/bug - both safely received.

[pitney]

Hi , yes my tinnitus improves after the B12 injection and eating walnuts helps also,came across that by accident but when I looked it up apparently there is B12 in walnuts

[Frodo]

I'm sure I've read something by Martyn Hooper saying that tinnitus is one of the most frequently reported symptoms of PA/B12 Deficiency?

I would find this, print it off along with any medical evidence available and then send it to the doctor.

As far as I know it's the result of the nerve damage that ensues from low B12.

[jillcur39]

ah thank you Pitney and I love walnuts. Thank you all for your comments - I feel strong enough to challenge her next time.

[Simplicity17]

Sorry, your 'consultant' is absolutely incorrect. Tinnitus is one of the many indicators of a B-12 deficiency. Perhaps this individual should pick up the book 'Could it be B-12' to enlighten themselves as to the harmful effects the lack of this vitamin has on the body. As well, COMMON SENSE dictates that if the tinnitus was alleviated after you get the injection, and it was there before...good grief!

[Sleepybunny]

Hi,

I have more than one type of tinnitus. The high pitched noises go away if I have plenty of B12 and when they come back I take it as a sign that I need more B12.

[jillcur39]

SO pleased to know I am not alone.... I KNOW b12 helps my tinnitus.