Have tried really hard to send the letter from library scanner with help but no luck so will cover some main points as I haven't got much time left:
"...We are unable to recommend B12 treatment at intervals of any greater frequency than that stated in the British National Formulary, which states loading patients with neurological symptoms initially until symptoms resolve, the only question here is if the neurologist opinion is that her symptoms are likely to be due to B12 deficiency, in which she needs to remain on loading (usually given for a maximum of 3 weeks) till they resolve if however it is not his opinion that these are likely to be related then it would be of little value to give a therapy which is not effective...."
"....We certainly would not be able to recommend weekly or two/three weekly injections once loading doses are completed as there is no proven data for this. Although there is little evidence for the harmful effect of B12 injections in the literature, there is some animal data that seems to suggest this..."
"....I should like to be very clear here that we will not be able to recommend any higher dosaging of B12 than that recommended by the British National Formulary...."
As you can imagine, I am quite worried by what has been written and apprehensive about Tuesday's early appointment. Not really sure that they have not already made up their minds, or that my later neurology appointment will change anything here. Please please can I have some advice as soon as possible, have only just received this letter ! I know it's Easter weekend, but I'm just hoping someone is around.
PS: brain not great at the moment, which is good in a way but also bad in terms of confusion.