Well my GP says I clearly have ME/CFS as my blood tests show I have nothing else wrong with me.
I have PA in my family and most of the symptoms, including some neuro ones, my GP wasn't interested in the new guidelines and has refused a therapeutic trial of B-12 injections.
Having discussed this over the phone with the Mr Hooper I feel I have two choices.
1. Pay for MMA, Homocysteine and Holo-T tests. If they show up a problem my GP says she will refer me to a haematologist, who may or may not treat me based on those results. (From what I've read this could go either way) I have been supplementing too, so this may skew the results. I've only taken Berocca but for a really long time (10 years). Two Serum B-12 tests 5 weeks apart showed a drop from 557 to 488 after I stopped taking it. How long should I wait if I do go for these tests?
2. Forget getting a diagnosis and start self-treatment, as I may end up doing this whatever the tests show anyway.
I could have the first injection done by a private doctor to ensure no adverse reaction and then continue myself.
Quite honestly, the thought of having to do the loading doses on my own when I have no medical experience is scary. Between the brain fog, exhaustion and my (already diagnosed) GAD (generalized anxiety disorder) I'm afraid I'll get it wrong.
Also, if I go down this route how much folate and iron should I take along with the B-12? What type of injection should I do? The thought of trying an intramuscular injection on my own with no experience or training is terrifying.
Any help or advice much appreciated. I'm just about managing to keep working at present, I teach a few hours a day but sleep a lot of the rest of the time. With each student I feel like I'm swimming through treacle to try and stay coherent through the fog.
(Thyroid, diabetes and coeliac tests are 'normal')