Hi everyone, this is my first posting on here. to know where I am at and why I am asking, here's a potted history I have been ill since 2002, same story as many, misdiagnosed, mine was supposedly m.e but I was never convinced. I was finally diagnosed with B12d and started loading dose in 2014 after a nurse accidentally (luckily for me) requested a B12 check along with my iron and folate. I am still been dismissed by the doctors and having learned about my diagnosis i opted to self inject as per BNF guidelines for neuro complications. I have had huge problems neuro wise that have never been take seriously. I have poor balance, cannot feel my foot placement and have loss of sensation and grip in my hands. My low folate was recognised when I first went to GP with pins and needles,cramp and electric shock sensations in my hands in 2010, the locum dr was great and as a result i had nerve conduction tests which showed deficit yet the surgery I am at have done nothing. I paid to see a neurologist privately because of all this neuro stuff in 2012 and before B12 diagnosis and despite taking all my nerve conduction test results he said that there was no explanation for the deficit or issues i was having. I did have an MRI of my neck but nothing else. I now know differently and despite every 2 days of injecting and now on weekly I have had no improvement and I recognise that I am one of those people who were misdiagnosed and the deficiency was not picked up early enough to have prevented this happening. Soooooooo now to my questions. . . . .
1) Would a full brain and spine MRI show and prove the problems that I am having neuro wise are down to Subacute combined degeneration SACD?
2) Since 2007 I have been experiencing central chest pain and on 3 occasions they have blue lighted me to A+E, I have then been dismissed as having strained my intercostal muscles when I absolutely haven't. I haven't been blue lighted since 2011, not because I have no chest pain but because I keep getting dismissed so I try to ignore it. However the severity is worsening with each attack (about twice a week and not upon exertion either) and I am so very scared. My Gran died aged 63 after her 4th heart attack, my uncle was 58 and just dropped dead with no symptoms. I have read about elevated homocysteine levels and B12 deficiency. How the hell do I convince the doctors before I too drop like a stone, i have aske dfor these levels to be checked but they said that they dont do those bloods?
Any help and advice greatly welcomed