No I'm not posting on the wrong site!
I have PA and had tumours so big on the left side of my thyroid that it was choking me, so they took the left side away. This left me with damage to the left side of my voice box, only one side works.
That was six years ago. Before that I had to have a full hysterectomy for what they said was endometriosis but when they did the operation they found a tumour which was going from my pelvic cavity into my bowel and causing bleeding.
Two years ago I was diagnosed with a tumour in my left kidney, hundreds of polyps in my stomach five of which were over 2.5cm again bleeding. Then when the kidney one was removed I got one in my leg and now I've got some in my remaining thyroid and the surface is said to have disease.
My question is that I've finally been given levothyroxin 25mg and initially my hair loss eased but now after six weeks it's falling out again!
The ENT cancer specialist has said that it's too dangerous to remove the piece of thyroid left until the tumours get too big or become malignant but they will keep an eye on them because these tumours can change if I get a certain type of virus or they get knocked, he has also said they they definitely think that my PA is to blame for the tumours.
It seems that every time something happens it always comes back to PA. I have fibro too, migraine which have caused auras on my brain and sight problems, I also have Ankylosing Spondylitis, asthma and had operations on my gall bladder.
Has anyone had similar issues?