I've been self injecting now for nearly 3 weeks, every other day. ( nurse did first one) dr has prescribed monthly for 3 months. My level was 162, does anyone have thoughts on when I should see some improvement ? I'm taking folic acid, and all other levels are good. Ferritin is 63, I have UAT which I take 125 mcg of Levo for.
Symptoms are : fatigue , forgetfull, headaches, dizzy, low mood, tinnitus ,breathless and general weakness . Intrinsic factor was negative , i eat fish and eggs and a normal diet.
Thank u
Written by
Ndobins
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Unfortunately, we are all quite different in the speed of response. Some symptoms should go fairly quickly. I found that my fatigue levels are the best indicator of how my levels are. When I had my loading doses it was fatigue that improved first. It was also the symptom to first return after a month.
Best advice is to see how it goes with monthly jabs, and ask to increase the frequency is symptoms start getting bad again before the 4 weeks are up. Keeping a diary of symptoms vs treatment really helps to get a good idea as to how things are progressing.
I whole-heartedly agree with keeping a log. In my case, I've found that balance and weakness issues were the first to disappear (within days of starting treatment), and the first to come back when I (try to) skip an injection. Fatigue has taken much longer to resolve but has very, very, veeeeery slowly gotten better. Memory is still shot. Been at it nearly 2 months now.
As you probably know, many of those issues can also be due to low thyroid levels too, making it difficult to figure out what's what.
Not suffering from it myself (I'm hypo but no antibodies), but from what I do know it's not really any different than treating just 'plain' hypothyroidism, since that's what it causes. And in addition, going gluten free seems to help a lot of people. I see you've posted on Thyroid UK before - that's a good group to check with.
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