Whats best while waiting for injectio... - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,985 posts

Whats best while waiting for injections patches , spray etc?

Mandlou profile image
5 Replies

Hi

My mum is going to get injections waiting fir specialist to tell gp.

I was thinking of ordeeing her some b12 but what would best fir by passing any malabsorbtion? And does mum need to take anything with it?

I have mfthr two genes so one maybe from mum but also nan had pa so , does that complicate what to get?

Mum has severe timgling wakes up with it down her face and had quite a few falls. She wakes up numb legs. Gets bouts if feeling very strange bad. Bad headaches fatigue very tiered . And doesnt tolerate any stress and really struggling to work.

Also on thyroxine just been raised slightly .

Would patches maybe help a little whilst she us waiting? She has git the result 160 so she will get injections just may be couple if weeks yet.

She gets very anxious, irritable and very low times.

Would my mum maybe need some adrenal suppport? Hoping b12 gets her better. She struggles to loose any weight aswell.

Be good if we can get her some relief now

Thankyou x

Written by
Mandlou profile image
Mandlou
To view profiles and participate in discussions please or .
Read more about...
5 Replies
wedgewood profile image
wedgewood

Of course injections work best in cases of malabsorption.In the meantime try sub- lingual lozenges (Amazon) or nasal spray ( both using methylcobalamin ) Best wishes .

PS I tried patches , and found them ineffectual . We are all different so maybe they would work for your Mum .Also make sure she has plenty of folate ( green leafy veg . Is best source ) or folic acid . Perhaps a vitamin B complex . This is needed along with B12 to do its work .

fbirder profile image
fbirder

Once she gets her jabs started I would get her to take folic acid tablets. Maybe methylfolate as that would bypass any possible MTHFR problem - although the chances are it would be no better.

Mandlou profile image
Mandlou in reply tofbirder

Thankyou thats great 😊C

Laura1961 profile image
Laura1961

i have managed after much battling to get my injections 8 weekly now and at about week 6 i take B12 Boost by Better You sold in Holland and Barratt. The daily recommendation is 4 sprays but initially I take about 20 a day reducing as the B12 kicks in. It is the only thing that has helped get me to the next injection.

i was diagnosed with PA 3 years ago with symptoms of extreme tiredness, numbness in my face and right side, tinnitus, confusion, unable to balance, awful dizziness, diarrhoea and then constipation, unable to go to work, couldn't deal with light or noise, palpitaions, cramp etc etc!

Since the loading doses and 8 week jabs I am coping well.

Mandlou profile image
Mandlou in reply toLaura1961

Wow thats alot of sprays ... u shoukdnt have to do that but good if it helps..

Thanks

I have right sided muscle spasm apparently on mri affects my face, neck arm leg ... goes sort of flaccid in my bum and cant lift my arm .... all tge time ive been searching for an answer this is tge only condition that ive read a few people having weakness or spasm on one side

X

Not what you're looking for?

You may also like...

B12 deficiency with High Serum B12?

I have B12 deficiency (non-diet related) probably PA although I I tested negative for the...

B12 District nurses/HCA

I got my 91 year old mums b12 injections reinstated in November 2020 after being told to go and get...
Nackapan profile image

Mislaid information

Hi All, Am still busy trying to get my mum the correct treatment for her B12 and have been...
Moggie profile image

Help For Pernicious Anaemia Injections Effect

I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12...
So_Drained profile image

Can you buy a folic acid lozenge???

Morning all. I know my question is a strange one but I have an 85 year old mum who HATES taking...
Moggie profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.