Hi all - I've been writing on here about my husband for some time, most recently to say that after being diagnosed with low B12 last year after suffering horrible symptoms, feeling so much better after his injections, but her then doing a blood test and saying all was fine, she withdrew his treatment and said he was better, leaving both of us almost in despair.
He had his last jab in June and has gone downhill rapidly after around 2 months.
I made an appointment with his doctor but wrote to her first to save time at appointment. I told her all his symptoms, and without seeming to criticize her, simply asked why he would ever have become deficient in the first place, why she had given the jabs, and if it was not PA it must be something else making him so ill, and that I had made an appointment to see her as I was so worried. But I did slip in that I knew others who had it and I understood that the treatment must be for life. My husband came with me in the end which surprised me so I know he must have felt really crap. He said it was a bit like his Mum coming with him but he came anyway. As I went in she said that she had read my letter.
She could not have been more helpful. I also put in the letter that 3 of his siblings have had cancer all involving the digestive tract and all at within 3 years of each other as I had been secretly worrying about this as well.
She said that she would immediately re-start the injections and that he could have them for life, she is to make an appointment with a gastro surgeon due his family history. I had not mentioned this to my husband before as did not want to add to his worry needlessly. She is also helping him with his depression and anxiety but I'm hoping he won't have to go down that route if he gets his jabs as I'm pretty sure all is connected. She wants to see him again in a month. She did say that his anti paretial? test had come back as normal. This is the one thing that confuses me, does that mean he does not have PA and then I start worrying he has something else. He is due to have his jab this morning, he is at rock bottom, this is just not him and is horrible for him and dreadful for me to see. It is affecting his work and his whole life and he feels he's letting me down. All I want is to see him his happy self. The difference when he had the jabs was pretty dramatic, but he definitely goes downhill after about 2 months. I feel like I'm obsessing about B12 all the time, but that's how it makes you. I feel for anyone who is not getting this simple life changing treatment after seeing the affects first hand. It's a nasty thing and there's no excuse for leaving people in such misery.