I was diagnosed with PA 18 months ago( not by my GP - I had to consult a private GP because my GP thought that serum result of 150 was ok) To cut a long story short after the usual 3 monthly injections proved inadequate I had to resort to self-injecting. My symptoms improved no end and I was much better. Even the numb feet have just turned into burning feet. Great . Now, all of a sudden I get times when I fall sleep very suddenly (whilst sitting down!)at any time during the day. it is a bit worrying .I haven't got the exhaustion like before . Do any of my fellow members get this happening, bearing in mind that I have been pretty well symptom free for so long, and I haven't changed anything? Would be pleased to hear if anyone has thoughts on this phenomenon . I suppose it could be a separate issue and have nothing to do with P A .GP took blood test, but as I haven't heard back I assume that it is normal
Whilst typing this, I have 'dropped off ' at least5 times. I wake with a jerk.