I have PA (was diagnosed over ten years ago), and my physical and neurological symptoms have been getting worse over the past 6 months. My GP referred me to see a haematologist but then yesterday I got a letter from the haematologist's dept saying that my referral had been rejected because the 2 monthly injections should be enough. I was extremely angry as I felt I have been struggling and struggling for a long time to get my GP to refer me to see a specialist. My GP said that current medical opinion was that I shouldn't need the injections more often and my PA was being treated correctly, perhaps I am heading towards chronic fatigue syndrome was her diagnosis and she has now referred me to see an endocrinologist...Would this be of any help d'you think?
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