What is your injection regime please? - Pernicious Anaemi...

Pernicious Anaemia Society

32,673 members24,074 posts

What is your injection regime please?

xJJx profile image
xJJx
13 Replies

I am trying to work out the regime i need .. 7 weeks after my last jab and i have symptoms ... 

Written by
xJJx profile image
xJJx
To view profiles and participate in discussions please or .
13 Replies

Do you get your shots from the gp? If so, do you have neurological symptoms? If yes then your gp will only give you them every two months, three if no neurological symptoms! If you are doing it yourself then have them when you need them, it's not toxic, excess is excreted. You can take sublingual lozenges or b12 sprays in between. Sorry can't offer anything else! :-)

xJJx profile image
xJJx in reply to

The gp. I have pins and needle and double vision  ,are they classed as neurological symptoms? 

in reply toxJJx

Yes! You can ask your gp for more frequent injections but I doubt they will, especially if they follow the guidelines. This is why many people on this forum buy there own. Look at the list of symptoms, basic and less common on the mother site. 

xJJx profile image
xJJx in reply to

Gp has agreed  to it ..will be just under 8 weeks 

Secondchance profile image
Secondchance in reply toxJJx

Good news. I get monthly but feel best on fortnightly

jillc39 profile image
jillc39 in reply toxJJx

lucky you

Gambit62 profile image
Gambit62Administrator

My symptoms start returning within 24 hours - get most of my B12 through nasal sprays and it works really well for me - do top it up occasionally with injections rather than the other way round.

jillc39 profile image
jillc39

two and a half weeks since my last injection and neurological symptoms  are back..... terrible pains in my feet and legs - but cant budge gp........

fbirder profile image
fbirder in reply tojillc39

I got my GP to agree to fortnightly jabs, but I start feeling rough after 10 days. So I now self-inject weekly and feel much better for it.

wedgewood profile image
wedgewood in reply tojillc39

Yes, the same happened to me. So now I self-inject,once a week,and feel well. If you would like to do that, come back here and we will help you to get what you need, Best wishes,

clivealive profile image
clivealiveForum Support

Hi xJJx  

No two patients are the same and it's amazing how many of us on here "feel the need" for more frequent injections in the run up to the next one. I've had P.A. for 45 years and I'm still trying to get the hang of it :D

nic27 profile image
nic27

I now have my injections every other month doc said see how i go if still have problems will discuss having them more often have had issues as recent blood test showing pernicious anaemia still & my pins & needles in hands gets worse whn due injection as does memory & tiredness. 

wedgewood profile image
wedgewood in reply tonic27

"Blood test showing pernicious anaemia still" That will always be the case I'm afraid. You have it for life! But you won't have the symptoms for life if you get the correct treatment. ---enough b12 and B9(folate) You are obviously not getting enough B12 .  If the doctor will not give them then you should self-inject. Come back here for advice if you have to decide on that.  Best wishes.

Not what you're looking for?

You may also like...

Having your injection.

i self inject EOD since october. Are there any advantages having the injection in the evening or in...
Annaunge profile image

New regime

Hi everyone, well I’ve come a little way since I last posted. I’m now taking: Vitamin D3 5000iu...

B12 injection advice please

I have been receiving injections every 3 months or so for last 3 years.When diagnosed ( by myself...
alanduke profile image

B12 injection advice please

I developed a B12 deficency in 2016 couldn't walk loads of symptoms only got 6 loading injections...
Paula1710 profile image

Your thoughts please

I am B12 deficient and ferritin deficient - diagnosed 2 years ago. I also have occipital neuralgia...
Ree2705 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.