I was told by this was "normal, no action needed" & picked up a print out today - the print out says my B12 is 224 & that it needs to be under 197/866 to be considered abnormal
My folate is 8.5 range is 4.60/18.70
LDH was borderline on the last test, so I was told to repeat & I asked for B12 to be added to the test after reading that POTs symptoms & much more that I live with can be down to PA - LDH serum seems okay at 459 this time.
There's a LOT of PA in my family, both sides, but especially my dads & Im only now realising how much it affects & feel quite upset & angry as I was refused tests many years ago, because I hadn't lost weight - I score well over "make an urgent appointment to see your GP" score on the PAS questionaire. I've always believed the weight gain was fluid, not actual weight - something only now I'm beginning to have taken seriously with heart tests & a diagnosis of hyperadrengic POTs
Though I'm not huge at s size 12, I'm bigger than I was & I constantly look 8 months pregnant, have lost feeling in lots of places, patches all over my body, finger tips, heels, etc, etc, heart racing, exhaustion, brain fog, hallucination (blamed on migraine) kidney disease & much more
My daughter is also very symptomatic & Im scared for her, she has an EDS Hypermobility diagnosis, but wasn't born with problems. She suffers a lot now she is almost a teen. Sensory processing disorder, POTs symptoms, diagnosed as such by an EDS specialist, but her 24 hour BP test was said to be normal & she's too young for the tilt test doctors now don't accept she has POT, dizziness, nausea & more
I've had to diagnose us & battle our GP for every thing, I was originally diagnosed as having M.E & Fibromyalgia, with chronic migraine, told not to transfer my health problems onto my daughter when she was clearly unwell, aching all the time & ongoing diarrhoea after a stay in hospital at 5 - this was blamed on growing get pains & IBS caused by school stress until she was diagnosed as having Joint Hypermobility at 11 - they now accept its EDSH, - which also turned out to,be my true diagnosis too - but where as I was like her, Hypermobile, I'm not sure it's the cause of how bad I really am - looking into PA, it fits far better, especially with my Mum diagnosed before she died, & 6 cousins, an aunt, grandfather & uncles on my dads side - my husbands sister is also diagnosed with PA, so our daughter is surely a high risk ??
I don't want her to end up like me, but I can see this is going to be another battle, so I would be grateful for any insight & advice please