Hi my name is Nikki and I am 24 years old, in the last few weeks I have been diagnosed with pernicious anaemia. Looking back I have been suffering for a long time. Symptoms mainly consisting of extreme tiredness, especially when waking up on a morning. Dizziness, palpitations, aches, stomach upset, breathlessness and tenderness/pins and needles. Most alarming was probably the slight memory loss and anxiety.
I eventually visited my doctor to be told I must be suffering from depression, I was then given antidepressants which I refused to take. I knew it was not that. I returned to the doctor once again to be told it must be stress and again I was given more medication. By this point my symptoms were just increasing and it became difficult to go to work of even walk anywhere.
I once again returned to my GP and asked for some blood tests. My blood test showed my b12 was severely deficient below 50pg when they should of been between 200-900 my folate was also only 3.8 with the guidelines been given as 3.1 - 20. My GP didn't really say much about this and ordered another blood test again showing the same thing. It was also noted my MCV level was also high.
It took myself and my partner to make yet another appointment to ask what this meant, by this point I had done my own research and was alarmed at how bad my condition was. Once again I returned for the doctor to tell me they had run some 'autoimmune' test and it had come back negative for coeliac disease. She then diagnosed my with pernicious anaemia it was ordered for me to have 6 loading doses which have been over 3 weeks I have had my 5th and feel no better. In fact I have had incredible pain in my arms legs and back. My GP has now advised I will only have them 3 monthly after that also. But I feel this will not be enough.
They have also now run tests for chron's which I am waiting for the results.
I have not been offered any folate supplement and this is now a concern. I just don't feel like I am being taken seriously. I have advised the nurse of my ongoing symptoms to be told 'you'll be fine, it might just be a coincidence'.
I feel my doctors don't really know how do handle any of this and constantly feel rushed out of every appointment. Knowing this is a common thing i would love some advice on how to handle this further. This is effecting my job severely and they do not seem to understand how serious this condition is.
Any advice would be helpful.