I came across this site after trying to find info on my long-term condition.
I will try to be brief! Diagnosed with CFS 11 years ago after struggling with health for years - had to change to a career where I could work about 4 hours a day. Worst spells lasted 3 months. That was until 18 months ago when it all got worse and no remission. Also, tingling in hands and feet, shooting pains and memory noticeably deteriorating.
A year ago I saw a horrible neurologist who seemed to think I was a hypochondriac so I complained and finally got to see a new one over a week ago. A phlebotomist I happen to know said to me "ask to get your B12 checked - they don't do it as standard". I asked, he checked and just yesterday I got a call from my GPs to say that this coming Monday I have to start a series of injections for B12D.
That is all I know but I am raging after finding out about PA online and being ill for so long. All my symptoms match and I have had 3 endoscopies plus video fluoroscopies in the past five years because I have problems swallowing water - which I have read happens with PA and yet no-one out of the multitude of people who have left me on pain-killers for years had ever tested my B12. I also have Vit D deficiency.
What I want to know is, is Vit B12 with all my other symptoms called Pernicious Anemia? Or is it just Vit B12 deficiency.
Does this mean my CFS was misdiagnosed? Apparently my B6 had been tested over the years but not my B12.
I cannot wait to get jagged on Monday, I have been ill for so long and it has been getting so much worse over the past year with the walking and memory problems.