I Choose Hydroxycobalamin Not Cyanocobalamin Delighted To Be Feeling Well Again.

[AutoimmuneAnnie]

Hi all,

I just wanted to share with you my dramatic improvement returning to Hydroxycobalamin. I was diagnosed with Pernicious Anaemia 10 years ago and received 3 monthly injections from the NHS. After a hospital admission for psychotic depression (long story) I felt I needed more frequent injections and after continually battling with my GP for this I gave up asking and I began to purchase B12 and inject myself. The first time I ordered Hydroxycobalamin and injected once per month, all appeared ok. The second batch I ordered was CYANOCOBALAMIN. I think I ordered it because it was slightly cheaper, I think. I have been injecting this for probably about 8 months, sometimes I would inject twice in a month but it didn't seem to have an affect.

I began to feel very unwell again about 4 months ago and this all came to ahead in the last two months, slowly becoming more tired, vision problems, dizzy, palpitations, depressive symptoms, headaches etc etc. I began to post on this forum as I read, researched and tried to work out what to do in a desperate attempt to regain my health. Why did I have pernicious anaemia symptoms when I was injecting B12 regularly?

I bought some Methycobalamin, thinking this would be better as it is the active form of B12 and doesn't need to go through any changes before having an affect, as I understand it. I began to lift a bit and noticed a slight reduction in my symptoms, I was definitely less tired but I was still very depressed.

Anyway, after having lots of blood tests taken on Monday I decided to inject with Hydroxycobalamin. ( I had also bought this recently). Oh my goodness, I cannot tell you the difference it has made to me. I feel alive again. I have energy again. I am so happy that I can go to work and get through my day with enough energy. All my depressive symptoms have gone, all gone with one tiny injection, I can't believe it. I feel so happy.

Now I just need to work out how frequently I should inject Hydroxycobalamin and I need to speak with my GP to see if they will agree to more frequent injections on the NHS. If they don't I will continue to self inject.

Thanks to everyone who has replied to my post. It is so nice to know there is somewhere you can come to for support and advice. Without this forum I would not have worked out what steps to take.

I hope my story will inspire others to KEEP LOOKING FOR ANSWERS to regain your health.

AutoimmuneAnnie x

[Secondchance]

Great news- I am so pleased for you.

[Katiemelissa]

Hi,

Excellent news, I am thrilled for you.

If Hydroxy works then that is what you definitely need.

My best wishes.

[wedgewood]

Really great news! It really pays to try out different cobalamins. Everyone is different,as you have just proven. Thanks for letting us know!All thevery best to you!

[Beattie-75]

Well done Annie, your story is an inspiration to the rest of us to keep on battling for good health.

[AutoimmuneAnnie]

Thanks to you all for sharing my happy news. It's 4 days later and I'm still feeling well. Now I just need to work out how often I need the injections. Wouldn't it be nice if my GP worked with me on this. No such luck. She tells me it is 'very rare anyone would need more regular injections that once every 3 months' Hmmmm, I beg to differ.

Have a lovely day,

AutoimmuneAnnie

[hendry]

I am another for whom hydroxyl seems to be the answer. I tried methylcobalamin infusions and lozenges but the most effective response was with hydroxyl. Again I feel it demonstrates that we are all very different with differing pathways and capabilities for uptake. Although we know a hell of a lot compared to 80 or so years ago we are maybe still in the infancy of unravelling this condition.

[pugsly]

I have had PA from a early age know in my late 60 ..have had to have many blood tranfusions but have ha a wonderful Dr who has always listened I have my injection every 3 months .. but I am concerned that you are over injecting ,do you eat plenty of vegatables and fish is so good for you and a good sleep pattern I feel tired i try to have a power nap and if still shaky eat a few squires of chocolate to give you energy all this has been advised by my Dr you can over do things

[Ruby-Dooby in reply to pugsly]

Some people cannot absorb b12 via foodstuffs which is why they have injections in the first place, so it is not helpful when someone is talking about overdosing on a vitamin that cannot be overdosed on. The body rejects extra vitamin b12 naturally and there is no need to concern yourself with having too much. I did notice that you have tried to imply that it could be a problem in a number of PA posts, but set your mind at rest it is not a danger to the person concerned.

[Katiemelissa in reply to Ruby-Dooby]

You are absolutely correct Ruby-Dooby, I echo every sentiment.

I have to inject every day and that is 100% right for me!

[hendry]

For the record, I have been injecting 1ml of hydroxycobalamin, at least once a week, for the past 3 years occasionally stretching to 10 -14 days, however at once a weekI feel as though I am perfectly normal.

[Gambit62 Administrator]

Great that you have managed to find what works for you and hope that it doesn't take too long to figure out the frequency.

I find hydroxo works best for me with the psychiatric symptoms but also find the methyl works with some of the neurological problems I have - particularly feeling in my left foot.

Definitely good to get your life back.

[Hidihi]

thrilled for you. i know how debilitating the whole b12 def, can be.

enjoy the rest of your life. HH.