Self injecting - Which B12 to use? - Pernicious Anaemi...

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Self injecting - Which B12 to use?

BrecklandRanger profile image
22 Replies

Can anyone tell me if the injectable B12 Cyanocobalamin is recommended? I'm hoping to get this from Goldpharma.

Also, where do you buy your needles? Thanks.

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BrecklandRanger
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22 Replies
sazzyb profile image
sazzyb

Are you in the uk? Hydroxcobalamin is used here but some people try them all before knowing which benefits most. Have a read - b12deficiency.info/b12-trea...

Re needles, there's a link on Dr Chandy's page to Medisave - (scroll down) b12d.org/buying-vitamin-b12...

BrecklandRanger profile image
BrecklandRanger in reply tosazzyb

Yes, I'm in the UK. Thanks for the link to the B12 treatment. I'll try to locate some injectable Hydroxcobalamin.

Most people seem to buy hydroxocobalamin and use medisave for needles, syringes etc see:

goldpharma.com/article/1/

mycare.de/

search for hydroxocobalamin

medisave.co.uk/consumables-...

ore info to be found on old PAS forum

pernicious-anaemia-society....

go to section diagnosis and treatment, then topic where to source supplies .

Kind regards,

Marre.

PS I use cyanocobalamin self bought (as it stings less) and get hydroxocobalamin from surgery.

Gambit62 profile image
Gambit62Administrator

I use a mixture of hydroxo and methyl (but mainly as nasal spray/drops as that works well for me) as they deal with different sets of symptoms - find hydroxo is good for my neuropsychiatric but methyl works better for the neuro.

I inject hydroxo as a fallback if things are going to be quite stressful for me or if I have a heavy cold - as at present, but I inject sub-cutaneously rather than intramuscular

BrecklandRanger profile image
BrecklandRanger in reply toGambit62

Thank you. Just ordered this one, and will see how it goes:

mycare.de/online-kaufen/lop...

Btw you mention colds. I'm having success keeping flu/colds at bay using large dosages of vit c (L-ascorbic acid). I use to suffer from hayfever, and a runny nose. I've also noticed a slight reduction in my fatigue. Bear in mind I'm also taking vit d too.

engels profile image
engels in reply toBrecklandRanger

That's the one that I use for most of my injections. Just be aware that it is 1mg/2ml compared to the 1mg/1ml normally used in the UK. That means that it is the same (1mg) amount of hydroxo but is in a more dilute solution so there is twice the volume of liquid which may influence your choice of syringe.

pvanderaa profile image
pvanderaa in reply toBrecklandRanger

There are several dosage levels of cyanocobalamin - the one you want is the 1000 mg/ ml and it comes in 1ml and 10ml vials.

Be careful not to order the 100 mg/ml as I almost did.

I self inject 0.5 ml twice a week.

Penni profile image
Penni

I get my b12 from my gp, it took a while but in the end they were ok about me keeping them at home as I showed them that I was ok about giving the injections to myself. I got more support from my district nurse than my gp but she was more than happy with the needles I got from medisave and the fact that I had brought a sharps bin and needle swabs as well. It is worth asking your gp about you keeping ampules of b12 as the ones that I bought were nowhere near the correct dosage that I need (they were 10 times too low) and I have ended with with nerve damage in my hands and feet.

engels profile image
engels in reply toPenni

That's fine if your GP is prepared to prescribe enough B12 to meet your needs. but very few of us are in that fortunate position. My GP will only prescribe enough hydroxo for an injection every two months and as I need an injection every two weeks to maintain optimum health it leaves me with no option but to buy my own supplies.

drumdoit profile image
drumdoit

methylcobalamin is the best b12 injection and can be bought from oxford biosciences (type in)

engels profile image
engels in reply todrumdoit

The best form of B12 is the one that works best for you as an individual. Methyl doesn't work for everyone.

drumdoit profile image
drumdoit

i repeat that methylcobalamin is the best b12 injection research has shown this to be so but please yourself

engels profile image
engels in reply todrumdoit

I'm simply pointing out that there is no universal best form of B12. I agree that the general consensus is that methyl is the most effective form but I can assure you that there are some people for whom methyl is most certainly not the most effective form of B12. I don't pretend to understand why that should be but one theory is that those people lack the ability to convert methylcobalamin to adenosylcobalamin but are able to convert cyanocobalamin or hydroxocobalamin to both methylcobalamin and adenosylcobalamin. An alternative for them, of course, would be to supplement with both methyl and adenosyl.

Harvena profile image
Harvena in reply todrumdoit

I disagree. Methyl is the best for some people, as are Cyanocobalamin and hydroxocobalamin for others, in some cases a combination of types. It is good that you have found the optimum one for you, but it is too simplistic to suggest that there is a one size fits all best treatment and I feel might mislead those that are new to the subject.

drumdoit profile image
drumdoit

i state once more that research has shown that methyl b12 is the best and that has been proven beyond doubt you make a lot of assumptions that i am self injecting where did you get that info from ---- i am in research so there you would to both look at and read the research

drumdoit profile image
drumdoit

its strange how some people simply will not take the research on board even when it is staring them in the face ---dr chandy recommends and states methyl is the best ---and the purest and is best absorbed in the body if yo want to use second best like hydroxocobalamin then that is up to you but that is what it is second best----- so you can keep using it and keep on getting second rate benefits and stop trying to get one over on me and what i know to be the facts----with regards to cyanocobalamin it is worse than useless ---and is also known to contain cyanide --so there--- one might as well be sucking a smarty the facts are the facts

engels profile image
engels in reply todrumdoit

My my, you are petulant little thing aren't you? Were you stamping your foot as you typed that?

When someone's personal experience doesn't match your research how do you explain it? Are they simply wrong or delusional or what?

drumdoit profile image
drumdoit

take a chill pill and grow up and stop trying to pull your hair out if you have any thats if you have any maybe you need some methyl to help it to grow i dont stamp my feet in front of children like you will just treat you like the child you are i wont be reading any more of your replies and will delete them before reading such childish comments i would rather not communicate with children such as you -----shows that you have already when you have to use such sarcasm and not listen to your betters as i said i will delete any of your comments and not read such rubbish

BrecklandRanger profile image
BrecklandRanger

Thank you drumdoit, and everyone else for your suggestions.

Emjaytee profile image
Emjaytee

I'm personally feel much better on hydroxocobalamin

Harvena profile image
Harvena

For goodness sake keep all toys in respective prams, the heat of parts of this discussion are helping no-one. For a start Methyl is not so easily available and the wonderful Dr Chandy, with the best will in the world, cannot help all of us. In the meantime we can help people get well (or at least find improvement to symptoms with the products that are affordable and easily available to them. BrecklandRanger please do not let this put you off asking further questions if you need to.

dragonfly5465 profile image
dragonfly5465

personaly I need both methly and Hydrox if I stop ether I go down hill fast, (starting to think I may need adeno), It's about finding what works for you.

Hydrox is a fraction of the price of methly, so if this works for you all the better, there's no way I could afford more methly than I already use.

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