Hi everyone, I'm new to this forum as well the illness. I was diagnosed with PA last month. My b12 was 103. Aside from all the fatigue, cognitive problems, digestive issues, dizziness etc, my neurological symptoms were so bad that I lost feeling from my toes all the way to my shoulders within 3 weeks. I though I was crazy! After my MRI showed brain and spinal cord damage, MS was ruled out with a spinal tap. My neurologist finally diagnosed PA. Apparently the brain and spinal damage shown from PA (subacute spinal degeneration) mimics MS. After multiple invasive tests I was finally seen by a Hemo who said in his 25+ yr career as a doctor he's never seen levels as low as mine. So, I've started b12 injections, and have seen some improvement in the numbness (no where else yet); however, I'm now having what I can only call neurological episodes. I feel like there is electricity coursing through my body where ever numbness still exists and my heart starts pounding out of my chest. It appears that they're getting more frequent and lasting longer. It's debilitating, I'm afraid to leave the house because they're so bad. Has anyone else dealt with this during recovery? My neuro said it's part of the healing and remyelination processIf but I haven't found anything remotely close to this online. If this has happened to anyone else, how long does it take to stop?
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