Cramping Toes

[stavis]

Has anyone out there experienced toes cramping & curling under? It seems to happen more in the A.M. when I get out of bed. Any suggestions?

Thank You!

[Jupeter]

Yes, I do, but more in the evening when sitting in front of the TV. I try to press them against something flat to straighten them out.

[GrammyC in reply to Jupeter]

I do the same thing! Eating a banana every day helps with this. It must have something to do with the potassium.

[Koko in reply to Jupeter]

You have my dog!!!! I llove my Westie. HE takes such good care of me. HIs name is Winston.

[Jupeter in reply to Koko]

Hi, Koko, she may look like a Westie but Muffin is a Tibetan Terrier. And I love her to bits. She takes care of both of us - when my wife fell over (her meds for Nocturnal Epilepsy affect her balance) she wouldn't leave her side and she knows when my wife has a fit.

I was never a dog lover but I now appreciate what they can bring to the home. Muffin is 2 yo and has lit up our lives.

[christinemc]

Mine do if I am tired or walk too far. I carry a folding stick now

[Koko]

YES and boy is it painful! IT usually happens if I forget my meds. What a reminder. My husband massages my foot until the meds kick in.

[Hidden]

I do and it makes my exercising difficult.

[lmacquinn]

I've had Parkinson's for 5 years. My toes have been curled most of that time. My doc has me taking stalevo every 3 hours around the clock. I haven't found anything yet that helps. Had a message once that helped for a short time. I've heard some people have done botox.

I'm afraid it's just of this disease that we have to deal with.

[jenniferdunstan in reply to lmacquinn]

I used oil of magnesia spray on And works well for a while but the body gets used to it.I alternate with BioFreeze.

[MagicMax]

Try the supplement: Chelated Magnesium 250 mg in the morning, and 250 mg in the evening. It is inexpensive and takes away 80% of the cramping. I use 300 mg of Gabapentin to handle the rest of the pain.

[Lindaonmeds in reply to MagicMax]

I take 300 mg Gabapentin (Neurontin) 3 x day...It is the only thing that has given me any relief; however, the cramps feel like the muscles are being ripped off the bones..it happens almost every night and when I am riding in a car..sometimes just sitting and it starts..it has been one of my biggest problems w/PD

[honeycombe3]

YES on my PD left side. Disipal was brilliant for me in this respect but after 3 yrs it affected my memory like demntia so I stopped taking it. Nothing else has touched it & at present my whole left side is getting worse. PD nurse is planning to introduce Amantadine if it continues. I take Tramadol for pain. I've found aromatherapy oils in a footspa a cheap treatment, physio, execises in water, deep tissue massage & acupuncture all help.

[Court]

Yes, I suffer from cramps in my toes and also in my leg on my tremor side. I usually try to walk these out but they can be painful, especially in my leg. Expect this is another thing that goes with the territory. The list seems endless.

[PatV]

Yes on my PD side toes stick straight out necessitating a larger shoe size. on the right (unaffected so far ) side, they have started clutching the floor like a prehensile monkey. I sing to the tune of 100 Bottles of Beer on the Wall:

All 10 toes on the floor

All 10 toes

If one of those toes should happen to curl

All of Pat will be on the floor!

[Hidden in reply to PatV]

Good song

[FrankBerson]

About 3 years into my PD my toes started to cramp. I find thatt wearing sandls or clogs relieves the presurre, Stavelo also helps.

Frank

[PatV in reply to FrankBerson]

I'm looking into the sandals. Just got off Stalevo. It hurt my ab.

[rattlered]

yes, my toes cramp but they curl upwards toward the ceiling. this is qute panfull. I've found rubbing the calves of the legs will relieve much of it.

[Larry_H]

I have curling toes on both feet. My toes are in constant movement inside my shoes. My massage therapist makes comments about how my toes are bent downwards. I just cannot help it. I do get cramps in calves and toes from time to time. Massage therapy is wonderful for your muscles.. (Added note)

[stavis in reply to Larry_H]

Thank You all for your suggestions on my culing toes, it's truly nice to know I am not alone in this battle with P.D. This site has been so helpful , I 'm glad I foound it.

Thanks Again!

[daveyno9]

my toes cramp when i put my shes on

[daveyno9]

shoes as well

[srarndt in reply to daveyno9]

LOL!

[BILLYRAY]

thanks and i thought it was just me....

[srarndt]

I used to walk my dog 2 miles a day before this issue reared it's ugly head. For a long while I would find temporart relief by walking backwards for a while. Then that stopped helping. MY doctor recommended that i see a podiatrist to have a "release" - code name for surgery wherein they cut the tendons - but before I went that route I found relief via my DBS. The night after my first surgery for it, (when they implanted the electrodes) was the first night in years when I did not have to get out of bed in the middle of the night to try to walk the cramps off. No problems in the 18 months since!!!

Anyone else out there with a similar cure or a contrary experience?

Steve (Bisbee, AZ)

[Pete-1 in reply to srarndt]

I "speak" sometimes to a lady in a chatroom who used to have trouble with gait freezing. Not just for up to 30 seconds like I do but for hours and hours. This has been well treated with a DBS operation.

[srarndt]

Suggestion: You'll find LOTS of replies if you put the word "Toes" in the search window.

[Estelle]

My big toes turn up & my dr said to never let anyone operate on them as it is coming from my brain not my toes.

[srarndt in reply to Estelle]

Great advice!

Steve (Bisbee, AZ)

[Lomtootie]

I tremor on the left but the curling occurs on the right side not only in the toes but the ankle. I have a very high pain threshold...but this is extremely painful. I take 200 mg Carbodopa Levidopa 5 times a day, Mirapex 3 times a day and 1 mg Azilect 1 time a day. Now I am taking an Apokyn injection first thing when I awake. Apokyn is my "hurry up" med. I have relief in 9 minutes. BUT, there has to be something else....any suggestions?

[Pete-1 in reply to Lomtootie]

I wonder if a DBS (Deep Brain Stimulation) op. might help?

[srarndt]

Excellent question - probably should ask a good movement disorder specialist, as well as a medtronics representative.

Steve (Bisbee, AZ)

[Hidden]

I have to massage the pad of my foot. I've taught my husband how to do this. It may cause some pain, but has said that when he presses on the knots( trigger points) he can actually see my toes uncurl

[Holbertsavich]

My toes on my affected side curl under while the big toe on that side flexes upward. It usually happens in the morning and when my meds haven't kicked in. Wearing my Orthaheel sandals helps as my weight is shifted to my arch. This helps till meds start working. I hate others experience the same but appreciate everyone sharing.

[etheline in reply to Holbertsavich]

hi my fellow PwP suffering with curling up bigtoe ,

what is orthaheel sandals and where can I purchase a pair.

[Beemacs]

I had both feet cramping this morning but it lasted only a minute. When I get them the only thing that has helped is riding my stationary bike and they leave in just a few minutes. Good luck! I know they can be very painful!

[Wjohn]

Hi. I knew a person who suffered with this and drank a glass of soda water prior to going to bed and it solved his issue. Don't know if it works for all but may be worth a try.

[Bouffere85]

I have been diagnosed with PD 5 years ago, and for the past 2 years my left big toe stands up straight from time to time, it's painful , it makes a hole in many shoes!!! My other toes curl down cramped with pain also and it also does but less on my right foot.

Amandine did not work for me plus it gave me terrible side affects....Botox I refused it...

Would love to hear about socks recommendations, shoes, foot exercises, home remedies but NO surgery

Thank you