Hi to everyone. I haven't signed in for awhile, so I hope all is well with everyone. The last time I signed in, I was going in for my first colonoscopy (April/May of 2019)...and I am happy to say that I got a clean bill of health for my colon and don't have to go back in for colonoscopy for 10 years. But regarding my PD...I was diagnosed with PD in June of 2016 by a Movement Disorders Specialist. Periodic, uncontrolled toe curling on my left foot only...was what caused me to see a physician prior to diagnosis. Since the PD diagnosis, I've been taking Carb/Lev 25/100, and it has been effective in controlling those symptoms.. Also, a few years after diagnosis, toe-curling started on the right foot also, so Sinemet controls both feet now...however, when I eat...an hour or 2 after eating, the toe-curling SOMETIMES starts up again, until the Sinemet kicks in. Other than the toe-curling, I don't experience any other major PD symptoms. My hands are a little shaky/unsteady if I hold my hands out and try to steady them, but it is very minor. When I'm laying down in bed, I can feel my legs a little shaky, but that is also minor.
My question is...are there any other PD people out there whose major PD symptom is foot toe-curling (both feet) ONLY. And how do you deal with it. I know there is something called "foot dystonia". Sometimes I wonder if I have that. I'm also considering DBS for the toe-curling to possibly reduce the number of Sinemet pills I take daily. If anyone has any input, would love to hear it, no matter how minute the input is.