Pisa Syndrome at Night?: I've had a few... - Cure Parkinson's

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Pisa Syndrome at Night?

rideabike profile image
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I've had a few incidences of Pisa syndrome at night when getting up for bathroom. Leaning to the right, I couldn't straighten up until after I sat down on the toilet. It didn't dawn on me then, or maybe I was too sleepy, but reading about the tower of Pisa syndrome in Parkinson's got me questioning. Has anyone else experienced it at night before it progressed to more definite leaning during the daytime?

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rideabike
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Angel1947 profile image
Angel1947

Yes, another disconcerting Parkinsonism.

rideabike profile image
rideabike in reply to Angel1947

If you have the syndrome did it start out occasionally at night in short bouts of it? Just trying to prepare myself. Apparently some exercises help. Thanks for the reply.

Pelley profile image
Pelley

Acceptance is the key...... Just change your name to Eileen!

Kidding of course..... PD is relentless. Sometimes I just say “it is what it is”

rideabike profile image
rideabike in reply to Pelley

I had a friend named Eileen and remembered her name by picturing her leaning. It worked. Does it start out at night in short bouts because it doesn't happen during the day...thankfully? Also read it happens in those of us with axial symptoms. Mine are all axial except the occasional stiff twisting leg from dystonia.

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