Hello !
What could help my friend who has parkinsons and has to go to the toilet often up to 4 times a night.
He is following the B1 protocol recommended by Daphne Bryan for about 3 months now. It might that helped slightly but urination is very uncomfortable.
He does not take any medication.
Many thank for any guidance
cialis 5mg - urologist had about 5 thingd to try
Perhaps Dr Constantine's protocol would suit better.
I had similar problems and after trying so many things, the only one that worked is 'desmopressin (DDAVP)" - webmd.com/drugs/2/drug-1212... . temporary solution, still working with my urologist to figure it properly out.
like with anything else on this and other similar sites, please do not take this as a medical advice, consult your doctor(s) and have them help you understand the benefits and counter-effects of any medication.
what’s his diet like? I had the same issue, decided to dig further without looking to medication. Had some simple blood tests at home, saw spike in blood levels after certain foods. Cut out refined sugars and alcohol.
Bingo, no more problem at all at any time. Better bladder control than ever.
I’d had the problem for over three years before the penny dropped.
Changes in diet can make a huge difference.
Good luck.
Yes will tell him. Nutrition is key.
Nutrition is super important. I can't stress how much of a difference cutting out sugar has made. I used to have so many accidents before it was completely soul destroying, now none.
i still have the regular over 70% dark chocolate but in moderation and there are so many healthy sugar substitutes, xylitol being the winner for me, anti candida and other health benefits.
Also try not to take drinks after 7pm.
How old is your friend--could be a prostate enlargement problem that needs to be addressed by the urologist. Has he been screened for a UTI and diabetes--primary care doctor could do this? And remember that the autonomic nervous system has a say in the function of the bladder which results in frequent urination--either the urologist or MDS can help with this.
I was going 5- 6 times/night until I started intermittent fasting. Had been eating 3 meals/day, then eliminated breakfast and now I eat between 12pm and 8pm. I cut out much sugars and simple carbs and have night time urination down to 3-4 times/night.
It is a blood sugar level issue for me. I had to figure this out for myself. Got no guidance from my urologist. She never brought up blood sugar levels, only offered to write a prescription.
My husband was getting up several times a night and now gets up once sometimes. For a while he didn't have to get up, so he feels getting up once is going in the wrong direction. At the same time, he has a history of prostatitis, so getting up is not surprising for him.
He doesn't restrict sugar but doesn't eat a whole lot of food. He stops eating after dinner and doesn't eat until breakfast though. He is using Dr Costantini's Thiamine Protocol. He's always taken a little Magnesium.
We try to eat a low polyunsaturated fat diet. We use butter and sometimes a little olive oil. He doesn't eat packaged foods. Doesn't eat out except about once a month. I think trying to eliminate pufas (seed oils) might have been key. Hard to tell.
The thiamine has helped him a lot. He drinks orange juice and tea every morning. Then has coffee after breakfast. He takes LDN daily and thyroid hormone. He takes a sublingual B12. But he's done these things for a long time. The things that changed before he got up to pee less often were low Pufa and the Thiamine.
I’m struggling with the same issue. I have tried different things but no success. It’s a condition named NOCTURIA. Type a google search to get all helpful info about it. In my case it seems to be more related to the inability to get a very deep sleep. When that happens, I’m prone to pee more frequent and with less volume. If I can reach a very deep sleep, then I probably pee twice at night ( great to me ) and with more pee volume. Unfortunately we PWP have a disruptive sleeping that won’t help with this condition.
This is exactly what i find. After about an hour of sleep i wake for whatever reason and only really semi sleep until about 3am then i sleep properly and dream until my alarm at 5am. I must get up and pee 3 or 4 times before 3am. Its defo to do with not being properly asleep. Im going to try melatonin when i can get some.
My neurologist recommended raising the head of the bed a few inches. I am not absolutely convinced but perhaps I should raise it a bit higher? Certainly worth a try.
Overactive bladder is probably my #1 most bothersome PD symptom. Super Beta Prostate helps. I recently started Nourianz, fingers crossed that it helps my bladder issues. One study is promising.
My husband found that the supplement saw palmetto really helpful.sometimes frequent trips to the bathroom can indicate prostate problems,which saw palmetto also helps with.One tablet each day of a good brand,and in five weeks he had got down to2 trips a night,compared to once an hour.
Very useful and interesting Thank you
Is diabetes involved, or maybe almost-diabetes (such as insulin resistance), such makes people very thirsty and therefore drinking a lot, then if you have much salt in you you may be holding much of it over until night time, especially after bed. Add alcohol to that, sugars to that, and yes that can be a problem for night time urination, also add to that possibly BPH benign prostate hyperplasia (which all men get if they live long enough) which squeezes on the nerves with more need to go, then there may be an emptying problem which is technical but very possible... If you haven't ruled any of these out, and in fact all of them, then you need to with a urologist and an internist.
Low dose melatonin at 2 mg/night of sustained release melatonin has shown benefit for nocturia and melatonin has also shown benefit for PD. Here is a study discussing the use of melatonin for nocturia :
onlinelibrary.wiley.com/doi...
Here is a study showing benefit for PwP at 10 mg/night :
sciencedirect.com/science/a...
And this study shows how melatonin reduced oxidative stress markers to healthy control levels at 50 mg/day :
ncbi.nlm.nih.gov/pmc/articl...
Here is a relevant graph from the 50 mg/day study :
Excelent inf and research. Very grateful Thank you
Hi Bianhua
I have had PD for over 30 years now and have been able to overcome most of my symptoms by doing FAST WALKING, which is recommended by the MAYO Clinic's Report on the production of GDNF. It is the only known way to produce extra GDNF and overcome PD symptoms.
You may think you cannot do fast walking but, if you can stand up on your own legs then you can learn to walk fast. You must concentrate hard on your walking action, first by standing up straight then, lift the other leg off the ground and move it as far forward as you can and land ON THE HEEL OF THE OTHER LEG and move all your weight onto that leg and then move the first leg forwards and land on the heel. If you concentrate on those two actions and start to walk as fast as you can, WITHOUT LOSING THE CONCENTRATION! Then walk as far as you can until you are tired, then, STOP.
SPEED is the important component, not the time you spend walking.
You must only walk every second day and for a maximum of ONE HOUR!
It took me two years before I got up to 7 k's per hour and another two years to get up to my present 8 k's per hour. I am now 88 years old and have been unable to walk much for the past couple of years due to other health problems, but I can stull walk at 7 K's per hour, but not for long.
Good luck!
John
Thanks John. Excuse me for butting in. I just came across your method in the last week and have begun to apply it. I have to say I have had good results already and I’m quite physically healthy apart from Parkinson’s of course. Just needed to fine tune and keep it up for an hour. Brain feels qualitatively different and more fluid spine. Less anxious, more relaxed. Is there a group or forum online for people doing this? Thanks again, Tim
Thanks Goldiewn. Please keep me informed BOUT YOUR PROGRESS, i NEED TO SEND IT OUT TO OTHER PD PATIENTSLL OVER THE WORLD.
John
Hi Tim. If you look for my website under the name of the book or my name, you will find a lot of info, which saves hundreds of questions. I am not allowed to mention the title of the book.
Ok thanks for the info John, I will do that! Tim
Hi John, Thank you so much. So encouraging to hear of your experience. I know he has heard of you ( I have already mentioned it to him). I know he has some issues with his hip, that hampers the walking somewhat. So he might have to limit it a bit. Still, really motivating.
We all have chaoices. Do we put up with a bit of pain, or take something to hide the pain and walk to reverese the OD?
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Parkinson's may progress more overnight - what do you use to help you get a good night sleep?
