Hi, my dad has been suffering with vascular Parkinsonism for a few years now. His main problem is with restless leg syndrome. He says his legs ‘ache’ and it starts in the evening. He’s had my 80year old mother exhausted getting in and out of bed on top of suffering from urinary incontinence. He’s been seen recently by his Parkinsons Dr, and is on Ropinerol, but it doesn’t seem to help. I’ve searched all over the internet, we’ve tried nearly everything I can buy/he can try to no avail. Does anyone have any other ideas that we could try, He is losing muscle mass now, but is otherwise quite cheerful about his horrible condition. His memory is terrible, but we all just humour it-including him 😞
Restless Leg Syndrome: Hi, my dad has been... - Cure Parkinson's
Magnesium oral (capsules) and topical (Magnesium Oil) therapy can help tremendously. I agree with Parkie.
When my husband started using the Magnesium L Threonate, (instead of the magnesium he'd previously been using) that helped a lot with his legs at night. Try it. $28.50 for (at least) 30 day supply. Natural Healthy Concepts is a good place to order from if you are in the States. My husband takes it after his last meal of the day but I dont know if that is critical.
The above are all very good recommendations, in my experience the magnesium both oral and topical have been mentioned a number of times here by people they helped.
RLS is also a symptom of iron deficiency, you should check with your doctor and have tests done to assess that.
If the ropinerole does not help, consider rotigotine (Neupro) and pramipexole (Mirapex).
If he is doing anything with caffiene, experiement with decreasing it.
Sometimes the gabapentin-related meds, because of their calcium channel effects, might be worth looking into. gabapentin (Neurontin, Gralise), gabapentin enacarbil (Horizant) and pregabalin (Lyrica).
I use an oil, sold by Natures Inventory, for years. I do not have Parkinson’s, but my husband does, which is why I’m on this forum
It’s an oil you rub along your spine, down the lower back each night (I pump out 4-5 x), and it really has helped me:
You could also try l-citrulline for RLS.
It may also help to alleviate urinary problems, and together with glutathione, it has been shown in a study to be neuroprotective for some lucky mice with ischemia. pubmed.ncbi.nlm.nih.gov/283...
L-citrulline is commonly used as a pre work out supplement, so it is easy to find.
Just notice that it is an amino acid as l-dopa is. So it could compete with l-dopa to pass the blood-brain barrier. So you might need to time the intake to not be at the same time as l-dopa intake.
As with all suppments, consult your MD first. It could affect other medications.
Two things to try immediately - a sublingual b12 (try Jarrow's methyl b12) and also folate. I would also add vitamin D3 for calcium balance. It is very possible that he is experiencing a blood flow and a renal issue (what medications is he on?) contributing to the nocturia and incontinence along with the hypnic jerk and ache. He might be anemic or lacking in minerals (K, Mg, Zn, etc) and also suffering low blood pressure which gets worse at night time. Do this - get a blood pressure monitor by Omron and have him monitor the bp when the episode occurs as well as through a day (for comparision). If it is confirmed that his BP is out of range, try my suggestions on the below post. Also cut out any alcohol, high carbs, and sugar.
Your father has serious CVD. Vascular Parkinsonism is a misnomer IMO. A bad term for someone with CVD with PD like symptoms. So find a decent cardio doctor.
Ropinirole (Requip)is a DA. Irrelevant here. For obvious reasons to anyone who has the slightest clue. Find another doctor who actually knows something.
Pumpkin Seed oil may help if it is urinary incontinence.
A visit to the chiropractor may also help.
Acupuncture also works for urinary incontinence:
Homeopathy also offers multiple remedies for urinary incontinence.
These are conservative, relatively noninvasive things to consider to help lighten the burden on both your mom and dad.
Hi there, I wonder whether we are looking at the wrong condition? I am a 72yr old UK female diagnosed for 16yrs. I have RLS off and on for most of this time but the dead leg part of your description I have experienced due to heart failure not PD.
You misunderstood what I wrote. I was referring to "cerebrovascular disease with PD like symptoms". A DA is irrelevant.
An "ache" in the legs is not RLS, at least not by my definition. Perhaps it is for you and many others, not for me.