Parkinsons Clinical trials

[Diddums]

Is it a good idea to ask specialist about clinical trials for Parkinsons? OR?

[MBAnderson]

There are so many different clinical trials in so many different phases, it's hard for any body to keep track of them all and for the most part, clinical trials are not really relevant to their practice, so I have found most doctors are not on top of them (but may feel the need to know) -- meaning they probably are not the best persons to ask. Best to do your own research and ask other PWP on this HU forum.

[Diddums in reply to MBAnderson]

Thanks for info

[WinnieThePoo]

If you are interested in participating in a trial the mjff trial finder is a good resource

[Diddums in reply to WinnieThePoo]

A good resouce it seems, Thank you

[ParlePark]

Winnie’s suggestion is a good one. foxtrialfinder.michaeljfox....

[Diddums in reply to ParlePark]

Thank you

[Hidden]

Research is important and it is both OK to ask and to use other research finding resources.

[Diddums in reply to Hidden]

Very important I Imagine.........thanks for info

[amykp]

Go to clinicaltrials.gov, then you can search for what interests you. There's a blank to put in the disease (parkinson's) and a keyword (stem cells, perhaps? dyskinesia? sleep disorder? diet? ...whatever you might be thinking of) and then another place to tick off whether you only want to see trials that are actively recruiting. You can pick whether you want to see only observational trials (where they don't DO anything other than watch) or interventional ones (where they DO something.) You can also limit the search to age groups, and to sex.

If you hit advanced search, you can limit more. For example, there's a map feature so you can find trials near you.

If you want to try a new treatment, I have done it...ask.

[Diddums in reply to amykp]

THANK YOU ........very helpful,

[Diddums]

THANK YOU