B-1 Dosage Change: I have been on B-... - Parkinson's Movement

Parkinson's Movement
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B-1 Dosage Change

Johnny_joe
Johnny_joe
7 Replies

I have been on B-1 for at least 3 weeks at 1 gram in the morning with no improvement that I can tell. Should I increase the dosage or is it too early? I am anxious to move on but I also realize I should be cautious.i am also on 25-100 carbidopa levodopa 2 tabs at 8an m, 2 tabs at 2pm and 2 tabs at 8pm. As well as 1 tab of .5 mg Pramipexole at each of those times. I will ask my neurologist to take me off of Pramipexole due to the inherent risks. I am asking for advise.

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RoyProp

Increase. Did you take videos as Costantini recommends?

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Johnny_joe
Johnny_joe
in reply to RoyProp

Yes I have. What would you say I increase to, Roy?

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RoyProp
RoyProp
in reply to Johnny_joe

Diagnosed 2012

My regimen:

The positives: no bradykinesia, I cut my food with a knife, no button difficulties, brush my teeth now w/o needing elect brush, more strength. Getting in and out of bed, turning over is easier. No more constipation. Parkinson's progression stopped. Suppressed all motor and non-motor symptoms...

Entering my 7th year post diagnosis and have not fallen, not once, to the surprise of my neuro. Was seeing neuro every 6th month, last visit he set app one year. He said if needed we could do some changes earlier. He said my condition can change in as little time as one week.

New schedule, now I follow this regimen:

3 x day C/L 50-200 ER : 8 am, 2 pm, 8 pm. Because it is ER, I take with or w/o food.

2 x day (8 am 2g, and 2 pm 2g) Vitacost vitamin B1 (as thiamine HCL) 500mg, easy swallow capsules

B1 Thiamine therapy reference / stop progression, suppress motor and non-motor symptoms:

(Thiamine HCL is oral substitute to injecting B1) 2 x day (morning 2g and at lunch 2g)

Doctor Costantini strategy that I find helpful "thiamine hcl stops the progression forever...".

Parky people say the first five years is your honeymoon stage with Parkinson's. After that, progression more rapid.I

I have gone from slow motion to normal motor action since joining the growing number of PwP that have started B1 regimen/protocol. –

Doctor Costantini - “Why is this? Because there is no medicine or drug that is able to affect all of the organs, whereas all of the organs function thanks to Thiamine. An important detail”, adds doctor Costantini, “the Thiamine therapy brings no collateral damage with time”.

Join my facebook group:

"parkinson's thiamine hcl"

facebook.com/groups/2322600...

Parkinson's Relief, Questions and Answers

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Divii

What inherent risks are you referring to?

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Johnny_joe
Johnny_joe
in reply to Divii

Addiction to sex and gambling. I haven’t experienced this myself but have hair loss weight loss brain fog and blurred vision . This could just be Parkinson’s of course. The

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Divii
Divii
in reply to Johnny_joe

I was diagnosed with yopd seven years ago at 28. I'm doing ok on one Pramipexole 0.75mg er od morning and one 0.375 mg er od evening, I don't have addictions or these symptoms But everyone is different. What's your neurologist's opinion?

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Johnny_joe
Johnny_joe
in reply to Divii

He goes along with my decision to reduce the Pramipexole for now

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