C/L dosage - feedback

[MissRita]

Hello all!

Curious about dosing on C/L. I just started taking 25/100 within the last week because I have been taking Mucuna for quite some time and I just got so sick of vomiting. My question is I find myself taking two tabs at least every 2 to 3 hours to keep the tremors at bay and even then I feel like I have to take more. I know that’s probably overdosing on it but nothing seems to help the tremors. I’m calling my doctor this week to see what they think about it. I also worry that my PD is progressing much faster then I would like because I do have to take more than two at a time every few hours. Any feedback would be greatly appreciated. Thanks!

P.S as an FYI when I was taking Mucuna alone I was using Barlow‘s and taking four cabs in the morning and then 2 to 3 caps every 3 to 4 hours throughout the day, but had to stop due to the vomiting.

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"Parkinson's disease"

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[park_bear]

That is a disturbingly high dose. Definitely in order to consider other interventions such as the high-dose thiamine if you are not already doing so. The focused ultrasound treatment that MBAnderson had seems to be efficacious for tremor. Does require $30k and traveling to Switzerland.

[MissRita in reply to park_bear]

Yes that is something I have thought about as well as DBS.. I think about efficacy and the possibility of it not working. Additionally, if it takes care of the tremor, does it help the dopamine levels stay raised or is that separate?

[park_bear in reply to MissRita]

I believe it does not raise dopamine levels, that it merely removes neural circuitry that causes the tremor and that people seem to be able to do without just fine.

[Vegegardner]

Have you googled. Hinz. B6.carbidopa.mortality rate. ?

[MissRita in reply to Vegegardner]

No but I will. I know about Hinz and his protocol. Thx!

[park_bear in reply to MissRita]

Important information about the Hinz protocol:

healthunlocked.com/parkinso...

[Cons10s]

I’ve also taken Mucuna Barlowes and have never taken anywhere near that amount. Can’t imagine. I hope you can find some relief and you may want to join the FUS PTT Facebook page to determine if you’re a candidate.

I plan to make that my final step when needed someday in lieu of ever doing DBS should it be necessary.

[MissRita in reply to Cons10s]

Tell me about it! I’ll join

[Cons10s in reply to MissRita]

If you have Facebook type in Focused ultrasound for Parkinson’s disease. It’s a private group so you’ll need to request acceptance.

[MissRita in reply to Cons10s]

I did!

[karlschmo]

Hi Rita,

I’m in the same boat... and it’s leaking like a sieve.

To maintain symptom relief I, too, need to take 2 C/L every couple of hours. I’ve found that 1/2 C/L and one Barlowe’s MP will buy me three to four hours, but of course the total C/L load is mostly the same, it’s just more convenient. It does, however, result in less Carbidopa, for what that’s worth. In addition, with my initial dose I drink a glass of Emergen-C which expedites the absorption, extending my “on” time by half an hour or so.

Dr. Laurie Mischley has recommended CDP Choline to help extend the “on” time but it’s difficult to say if it works since so many variables come into play during the course of a day. If it does work it probably only extends the C/L effectiveness by 20%.

Hope this helps.