Thiamine HCL,Vit D, Magnesium,NAC, Omega3, Cycling, Fast walk are The Game Changers.
The past 2 months have been my best days of nearly 3 years dealing with the PD.I amnot sure about the future in how the disease will manifest itself but I am more than happy to be as it is now.
In the past months I have only seen improvements. Almost 0 (ZERO) symptoms.Why almost ? Because I still have PD.
Thanks to Doc Costantini & Thiamine HCL,
I find how I feel is dictated by how much exercise I'm getting, what I’m eating, how much rest I’m getting and how much water I’m drinking. I also take Vit D, Magnesium,NAC, a few other vitamins and selegiline.
Very beautiful , KIa
For sure I would keep up the guard as you are doing very well ,as for me there may be little ups and downs because the body's response to drugs or thiamine HCL is not always the same, but after three years of thiamine HCL (vitamin b1) are still at the same levels as you say "an almost normal life".
And I'm not the only one.
And it's not a small thing.
A special thank to you and all the people here on of HU, because you are the best in the world. You never give up, this is the only way to win and we win.
Special thanks to Dott, Costantini .
but not EVERYONE?
Eh yep, so it would seem from some comment here on HU, but there is no census, self-diagnosis would not take it as a fact for better or for worse.
Success stories should be considered as a starting point and only a good clue how you well know.
But IMHO depends very much on the stage and extent of the lesion of dopamergic cells as perhaps dr C hypothesized here:
highdosethiamine.org/therap...
but you can ask him directly by writing to him if you have not already done so.
I was lucky, my datscan gave a more pronounced injury on the one hand and my initial UPDRS of three years ago was around 20/30 points without ever having taken levodopa, now in winter it is around 10 points but I did it myself on line. (on 199 point)
farmacologiaclinica.info/sc...
Some small high and low there is always, with the cold and fatigue of the work. I live a very intense life, but stressful (I like it this way or nothing) and with thiamina + ldopa I can still afford it for now.
My wife says that overall they have improved a lot since first in 2014, but you know wifes always have so much admiration in their husbands.
God bless women and wifes all over the world.
Moral: Why believe when you could check it out for yourself? The only thing I ask of you is to make sure you do it on the right terms and at the right time.
Hopefully.
Gio
Whee-ha. Good going.
what is the dosage of your vitamins and what kind of magnesium.
Im getting ready to start B1 HCL, THANKS
cshamb
I have been taking Aximagnesio 300mg with my Thiamine morning dose advised by Dr Costantini and 400mg Magnesium Citrate at bedtime(self-medicated).
Kia17 youre not in the USA, are you? I cant find a US supplier of AxiMagnesio. Any equivalents?
Bassofspades
I am in the UK and get the Aximagnesio directly from manufacturer in Italy.
How does one contact that dr.?
Rosabellazita
See this link please
healthunlocked.com/parkinso...
How do i contact him
Dr Costantini’s email can be found on the title of the post.
Thanks to you all, I began taking Thiamine HCL 6 weeks ago and have realized great improvements to my motor abilities. I’m 3.5 years since my first noticeable PD symptoms, a slight finger tremor and gait issues. I’m NOT using any Pharmaceuticals, but do use Mucuna daily, a variety of vitamin already mentioned by others, plus Moringa and CBD’s.
I’m 56, running a Company with 25 employees, shopping, traveling and enjoying life. I exercise 15-30 minutes most days.
Additionally I’ve learned a great deal about what I call “brain fuel” from a book called, Genius Foods by Max Lugavere. This has had a remarkable effect on my cognitive clarity and energy level.
Thanks to you all for the B1 insight.
Constance
Hi !! Where do you living ?? Have you considered to visit Dr. Costantini, considered to do the Hinz protocol ? Which Mucuna do you use and it which form ?
How high in % the CBD Oil ?
I company with 25 employees ??? >>>>> how is it with your motor skills or do you mainly have to order, command (>>> "using your voice") ??
Kind Regards
Constance,
If possible, could you please post a copy of your post above to this thread that is a compilation of people who are using thiamine /B1 and their results or lack of results. The idea is that people who are considering using thiamine can get an idea of reasonable expectations on thiamine as well as a potential time line in one easy to follow thread . Thank you!
healthunlocked.com/parkinso...
Art
Cons10s
Please can your let us know how much Mucuna and from which manufacturer you are taking?
I purchase from Banyan Botanical, I like their tincture and add it to water when I don’t have time for the powder form in a smoothie. I also use Barlowe’s 40% capsules when on the go. I recommend starting with the allowances allotted by the manufacture listed on the packaging and take it up from there till you find your sweet spot.
How much b1?
I have been taking 1.5gr Thiamine in the morning and 1.5gr at noon with empty stomach for year.
Thanks !! I also do now with much more Discipline
NAC,
Mg ((1)Mg glycinat,,, 2) Mg stearat,,, and 3) Mg Theoronat
Vit D ( + Vit K2)
Omega 3 (DPA more as EPA)
Exercising (still not enough)
Thiamine HCL (have to start again (with injections), but I'm planning to make a short holiday in summer to Viterbo (or Vilerbo)
Alpha-Lipon-Säure
I'm really thinking about doing the Hinz Protokoll, but the costs.........
Do you still take medication and are you working ??
JANVAN, please read this before you waste your time with Hinz
healthunlocked.com/parkinso....
Thank you , MBAnderson, but I'm not really convinced, nor one, nor another way........
...Hinz has still some impressive videos, or are they fake ?
And some members of this forum are really satisfied about it...
Of course the results of Dr. Costantini are more proved, and more people have been helped......
If you go that route, please let us know how it does. I hope it works for you.
So happy for you, Kia. That's wonderful news. xx
That’s great....what’s NAC please
Toogood
N-Acetyl Cysteine
Thanks for the quick reply...I googled it too..do you take the 600 mg..
One a day ?
I take one 600mg twice a day.
That is great news!! Thanks for sharing, success stories are very encouraging.
Thank you. You are absolutely right. That’s the main reason I share my story.
I'M STARTING B1. SHOULD I CONTINUE TO TAKE SIMINET AND MUCUNA? 25/100 4 X A DAY. AND MY DOC WAS CONCERNED ABOUT B1 BEING TOXIC AT HIGH DOSE. PLS HELP
Bravo
I purchase from Banyan Botanical, I like their tincture and add it to water when I don’t have time for the powder form in a smoothie. I also use Barlowe’s 40% capsules when on the go. I recommend starting with the allowances allotted by the manufacture listed on the packaging and take it up from there till you find your sweet spot.
Encouraged! What dosages are u on for NAC & Thiamine HCL (IV or oral)? IV supplements are becoming popular in USA 🇺🇸 and my town in NC...
AmyLindy
I have been taking NAC 600mg between once or twice a day (orally).
Thiamine HCL 1.5gr morning 1.5 gr at noon with empty stomach.
From this string it seems reasonable or popular to use: NAC orally 600 mg 2x/d (but IV is better/immediately absorbed),Thiamine as injection or oral? 1.5gm 2 x/ d., 400 mg Mag Cit bedtime , vit D supplement if needed (check labs, I finally hit high threshold after Rx supplements ). MP holds promise as does Hinz protocol for some. Am I missing any major recommendations?
AmyLindy
I have no experience of taking PD meds or supplements IV so cannot comment on that. The magnesium I take is an Italian version called Aximagnesio which is really good once taken with Thiamine HCL. Its been recommended by Dr Costantini. The magnesium citrate 400mg at bedtime is self-medicated.
Have you contacted Dr Costantini?
Thx Kia17 and no contact w Dr Con. I want to get “organized” first. I will add that I also take Mannitol as a sweetener and “prebiotic” -sure helps w constipation and clearing a crowded room - if you are not careful w dosage (gas ) 
!
2. Probiotics are not in my regimine except by food or beverage. Kombucha is a drink I use with mixture of probiotics , with a great degree of variability/brewed by a friend and not regulated. If MP were properly regulated (standardized). I might try it but haven’t needed it for PD Symptoms yet, anyways.
3. A lot of exercise, good nutrition and stress management has helped sustain me at this stage. Selegiline pushed me into tremor reduction, enhanced unilateral gait and arm swing.
4. I Feel it is best to find all the right sources while we are fresh, so that we have our references later, when we need them and can’t quite articulate.
5. I’m so impressed by this group and willingness to share secrets of success, trials, and even error!
AmyLindy
Thanks for your input. I think exercise especially those that increase hear rate like: cycling , fast walk work very well in conjunction with the supplements.
I also take 5grs Mannitol 2 times a day and quite happy with the result.
How did you determine 1.5 grams as the right dose of thiamine for you?
How many hours between your first dose of thiamine and your second?
What dose of vitamin D and omega-3 are you taking?
I didn’t determine, Dr Costantini did.
Thiamine at 7.30 AM and 1.30 PM.
D3, 1200 units a day.
Kia,
The above post is 2 years old. You have now 5 years post diagnosis. Can you please update us n your current condition and regimen. What is the status of progression or regression
Hi Coolman
It should be at least a decade after my PD onset.I am doing very well with no progression. What I have learned is that if we commit ourself to a healthy lifestyle we can fight back PD with least complications. Eating well , Exercise, taking enough required minerals and vitamins, mindfulness are the best approach. In one word ; Commitment.
Immersive Virtual Reality Exercise Games for People with PD?
Quick Questionnaire. Just humour me 😊 
Increasing my dose of B1 after 4 years and 7 monthsHow I manage my symptoms, hoping to slow down progression of Parkinson's Disease.
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