My experiments with supplements

My experiments with supplements

Hi I am new her but not new to Parkinson’s ,I was diagnosed 7 years back but I was suffering from symptoms many years before that .

In my country United Arab Emirates the vast majority of people doesn’t know much about PD they think it’s a little bit of shaking which is not a big deal , my friends , coworkers and family think that I am pretending sickness because sometimes they see me doing fine when I take my medications.

I don’t want to bother you with my story and to make it short I tried to manage PD and cure myself in every possible way.

I experimented almost everything came to my knowledge and mind including supplements except DBS and spent a lot of money for that almost all my savings.

I did stem cells, Ayurveda, herbal medicine, energy therapy, Chinese medicine, acupuncture, Nilotinib and ext.

But lately I think I got some positive response from my experiments.

I reduced my medication to the half, and they are working for longer periods, my dyskinesia improved my sleep is better and I can drive again my facial expirations is normal, my cognitive and memory are much better and still improving many thanks to silvestrov posts on this forum and others .

I am taking now only:

450Mg Sentiment every day divided into 3 times (250+25Mg one time and 2 times 100+25mg)

Neupro patches 6mg

Supplement

Xanthahumol morning only

Baicalin before sleeping only.

Glutathione Nebulizer

Drinks

Green Barely juice

Trevo fruit drink

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22 Replies

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  • Please send me your email I would like to contact you

  • I am assuming that you are using the nebulizer with glutathion. How do you do it? I am using it in the nasal spray bottle

  • yes i use it with a small device, you can buy it from pharmacies or any drug store .

  • So how much do you put in and how long do you use it for. Are different brands glutathione easier to dissolve. I do see the little nebulizer on eBay for about $25. I did take glutathione in liquid pill and sublingual form and that never seemed to do anything so I started spray bottle it seems like I'm feeling better

  • i pot 10 drops in the device and press a bottom and inhale it .

    i use it every day for almost 3 months until now .

    glutagenic.com/product-cate...

  • I see the page you linked to has two different products intended for nebulizer use, GlutaGenesis and GlutaStat. which one are you using?

  • I am using the GlutaGenesis

  • What is the nebulizer w/ glutathione for?

  • 2 - 3 days ago I forwarded a study. if u search glutathion it should be here. glutathion helps with symptms and we're low on glutathione. With intranasal application it crosses the brain barrier. That is what the study said.

  • Inhaled for better absorption of Glutathione .

    Glutathione is powerful antioxidant activity protects the brain from free radical damage ,its made in the body and used in every cell ,some scientist believe that Glutathione may improve some of the symptoms of Parkinson's disease .

    Here how to Use Oral Glutathione in a Nebulizer:

    livestrong.com/article/2283...

  • Very interesting, Jaber, and thank you for sharing. Can you tell us a little bit more about the three supplements you have found helpful? Also, I am curious about your experience with nilotinib.

  • you can find more about the supplements in the following links

    Xanthahumol

    acs.org/content/acs/en/pres...

    Baicaline

    pa2online.org/abstract/abst...

    Glutathione

    drhoffman.com/article/parki...

    I tried nilotinib (tasigna 150mg) for 4 months the only improvement was in sleep and cognitive issues and stopped it because of difficulty in breathing .

  • These all look good. I found the xanthahumol here: swansonvitamins.com/swanson...

    The study you linked to for baicaline is actually for baicalein - both of these are different extracts of skullcap available from Powder City. The baicalein is more expensive and according to the study is the one to use. Which is the one that you use?

    Are you getting the glutathione via IV?

    Sorry for all the questions, but as I said, these look good.

  • Sorry its a spelling mistake

    i use these two products

    bioactivesinc.com/product/

    hawaiipharm.com/Huang%20Qin...

    glutathion nebulizer

  • I am glad to see I am not the only person who has discovered S. baicalensis. I use pure baicalin and here is a good article about of S. baicalensis:

    anaturalhealingcenter.com/d...

    Raising glutathione levels is a no-brainer and I use the precursors NAC, alpha lipoic acid, acetyl l carnitine, milk thistle and theanine.

    I searched for a natural alternative to nilotinib and found xanthohumol:

    healthunlocked.com/parkinso...

    I am certain it is much safer than nilotimib and am wondering what difference you felt after taking xanthohumol? I rotate taking different herbs and will take it in the future.

    Best wishes and keep up the good work. I know from personal experience if you can couple the right vitamin, minerals, herbs....they can have a much greater cumulative effect together than taken in isolation.

  • Thank you silvestrov

    xanthohumol is a game changing for me thanks to your old posts its really helped , i take it with water first thing in the Morning on empty stomach and i don't take any thing after it for one hour,the result i am getting is better than Nilotinib 150Mg , my medications working for longer hours and i have being able to reduce the sentiment dosage to the half, all my symptoms improved specially the cognitive ones and memory , i feel much better than 4 years back .

  • I am glad to hear someone tried xanthohumol and that was why I posted the information. Any antioxidant which is 200 times stronger than resveratrol needs to be looked at closely. The whole point of this forum is to exchange experiences and look into previously unknown options.....sure xanthohumol has not been thoroughly tested for PD but this does not mean the human body will not respond to taking it. Perhaps xanthohumol will be the new nicotine. Moderately drinking beer reduces the risk for PD just as long term smoking (nicotine) reduces the risk of acquiring PD. And now we have nicotine patches for PD.

    In terms of PD risk reducing behaviour: eating berries twice a week reduces PD risk. Taking 2-3 ibuprofen a week reduces PD risk. Drinking beer moderately reduces PD risk. Long term cigarette smoking reduces PD risk. The risk reduction study I am most interested in is black tea. Singapore researchers studied 63,000 people of Chinese descent and found that drinking 6 cups of black tea a week reduces PD risk by 71%:

    neurotalk.org/archive/index...

    The original study: ncbi.nlm.nih.gov/pmc/articl...

    The fascinating and confounding factor in this equation is drinking green tea did not have an inverse relationship with PD. Consider that all the components of green tea have been shown to be neuroprotective in PD models: quercetin, EGCG, caffeine, kaempferol, myricetin, theanine, rutin.... and yet, black tea has the inverse relationship. The mystery of black tea is that the thearubiggin and theabrownin fractions have not been test in PD models (theaflavin has been tested). So the herb I have been taking for years is black tea extract. I have rotated other herbs but not BTE. Here is one important fact about BTE:

    Neuroprotective and neuro rescue effect of black tea extract in 6-hydroxydopamine-lesioned rat model of Parkinson's disease

    researchgate.net/publicatio...'s_disease

    When examining nilotinib I was worried about the side effects and wondered if something that potentially toxic can be used as a long term therapy.

    I am glad to hear your condition is improving. Again, keep up the good work!

    Rich

  • SILVESTROV: being new to PD age 76, what protocol do you suggest for early stage PD? Agonists? MAO inhibitors, Sinemet? Thanks from California

  • This is a complicated question and I will send you a message.

  • today i started adding hydroxytyrosol to my supplements hoping to get more improvement .

    prohealth.com/library/showa...

  • I reduced my medications further from 3 days ,I cut 250 mg of senimet and I still doing fine ,now I am on :

    2 times a day senimet (100+25mg)

    one Neupro patch 6mg 24 hours

    Supplements:

    Xanthahumol +Baicalensis together 2 times a day at night and early morning two hours after food or on empty stomach .

    Curcumin 500 mg 2 times

    Loins mane 1gm one time a day

    Glutathione Nebulizer once a day

    Omega 3 two times

    Rooibos organic tea 3 times a day

    and planning to add PPQ soon .

    it seems that this combination of supplements working for me .

    The only problem I am facing is a nick pain I don't know if it's due to the side effects of the supplements or from something ells .

    Apart of that I am exercising every day

    Maintaining a good diet mainly Mediterranean , (olive oil for salad and coconut for cocking )

    Eating black rice every two days and wholegrain bread

    plenty of nuts

    Drinking Hydrogen Rich water

    and fasting one day a week.

    This is my program for managing Parkinson's and it is working.

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