New diagnosis of PEI Advice please - Chronic Pancreati...

Chronic Pancreatitis Support

967 members336 posts

New diagnosis of PEI Advice please

TFH1 profile image
TFH1
3 Replies

Hi all. I have Type 1 Diabetes, Coeliac Disease and Pernicious Anaemia. I've just had a call from my consultant to say I also have tested strongly positive for PEI. He has prescribed the enzymes and an acid inhibitor.

Can I ask those of you who have been on this journey whether you felt significantly better for taking the enzymes? Other than digestive symptoms, I have weak, ridged nails and quite severe hair loss . I have never been able to get my Ferritin above 20 despite supplementation. Has anyone seen improvement in these types of symptoms? Anything else I should know? Thanks for any advice.

Written by
TFH1 profile image
TFH1
To view profiles and participate in discussions please or .
3 Replies
Paula1710 profile image
Paula1710

Pernicious Anaemia and coeliac I believe are causes for PEI and can inhibit vitamin absorption I too have severe hair loss and struggle with ferritin.iron tablets I think have given me gastritis.My dermatologist said ferritin needs to be over 50 for hair regrowth and stop loss.Ive tested negative for PA and coeliac loads of time.They started me on enzymes as my FE was low on 1 occassion.They didn't work for me but loads of people have had improvement with them.If your stool sample was a bit runny it can cause a low reading.i insisted on a repeat as mine at 23 was loose.It came back at 424.I too have loads of digestive symptoms and undergoing tests if your consultant has advised them then see if they help Have they not suggested iron injections or won't they do them unless you have anaemia? I'm going to ask my gastro Tuesday as iron tablets are making my stomach worse I am not medically qualified this is just my experience

TFH1 profile image
TFH1 in reply toPaula1710

Have you read this info on iron? helvella.blogspot.com/p/hel...

Skye_MC profile image
Skye_MCAdministrator

Hi TFH1 👋 We have some resources on our website you might be interested in while navigating PERT for PEI – hope these help!

Video Guide: Dosing Pancreatic Enzymes for Adults: mission-cure.org/dosing-pan...

Webinar: Pancreatic Enzyme Replacement Therapy: mission-cure.org/pancreatic...

Blog: My Experience with Pancreatic Enzymes (PERT): mission-cure.org/my-experie...

Expert Q&A: EPI and Pancreatic Enzymes: mission-cure.org/epi-and-pa...

Not what you're looking for?

You may also like...

dietary advice please

hello, I’m being investigated for several things at the moment, Liver, pancreas or ovarian...

Creons dosage advice

I’ve recently had a diagnosis of pancreas insufficiency via a stool test. My level was 89. The...
25clai profile image

Diagnosis

Following a CT scan I have chronic calfic Pancreatitis, severe Pancreas insufficiently and as a...
Jackie1947 profile image

Just been diagnosed with pancreatitis- bit of a shock -

Hi All, I’m new in this forum, but thought many of you must have tried to deal with this for a...
25clai profile image

Any advice

Writing on behalf of my Mum. My Mum had her pancreas removed three years ago. She is still...
O07vegan profile image

Moderation team

See all
Olivia_MC profile image
Olivia_MCAdministrator
Shruthi_MC profile image
Shruthi_MCAdministrator
Mandy_MC profile image
Mandy_MCAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.