Advice Needed !

[BJS123]

I had my first pancreatic attack 2 years ago. They put the attack down to gallstones and removed my gallbladder. Since then i have had another 5 attacks. All of which i was hospitalised and had morphine, IV fluids, Iv Pain relief etc. I have had IGG4 Test which was negative. I dont drink and no one can seem to get to the bottom of it. I had an attack earlier this month was in hospital for 6 days, came home for 4 days and then i was back in for another 5 days ... I'm at a loss as to what do.

[Hidden]

So hard for you.I do hope they can identify the problem. Surely, in 2 years they should have explored this more thoroughly.What tests have they done???? I have just come out of a very severe attack of cholecystitis. Feeling rough. Been on the waiting list for gall bladder removal for around a year and I have had several attacks throughout the past 2 years. I am awaiting tests. From symptoms I think mine is linked with a pancreas issue. Like you I do not understand why we are not getting more support and why support has been slow.It is so hard to know what to do about it. Good luck.

[BJS123 in reply to Hidden]

So sorry to hear that. I luckily had mine out but sadly i keep getting attacks. I am waiting for an EUS next but other than that i'm at a loss as to what to do

[Hidden in reply to BJS123]

I understand that an EUS might identify more. I wish you all the best .

[Jackie1947]

First of all I'm sorry you're in this situation. A year ago I was diagnosed with pancreatitis. Horror ,shock went through me.. I don't get treatment as what is available one size doesn't fit all. Also Diverticular disease,unspecified colitis. My consultant is a drip,explains nothing,doesn't much like questions. His attitude is here's a prescription see how you get on with it. Bearing in mind he knows steroids are the devil for me. Anyway seeing him again this month and if his attitude doesn't improve I will ask to see a new consultant. I had my gall bladder removed 54 years ago and last year was diagnosed with calcification of the pancreas,enzyme deficiency.

[Paula1207]

I'm currently going through somewhat of the same issue. My first episode of pancreatitis was a year ago, during that time I have had every test known to man (CTs, MRIs, EUS, genetic testing, all sorts of lab tests) and they all have come back negative. It's incredibly frustrating, but it sounds like they haven't done much testing for you. Is there any reason why they assumed it was your gallbladder? Did they see something on imaging or did they take it out just because gallstones are the usual culprit?

[BJS123 in reply to Paula1207]

They did, i had MRI, Ultrasound which were clear and they did an endoscopy which showed stones. I have had so many scans etc along the way .... i saw the specialist on Tuesday and they said they want to do another MRI before and EUS so i'll have that done! what a mess!!!!!

[longingtrustingHIM]

I am praying for you. You have come to the right place for support. This is a great opportunity to just share and receive others’ caring tips or advice. And resources that are available for understanding better our unique CP symptoms, which vary a lot between individuals. I have found this site to be an encouragement.