Last chance to participate in the Manchester Digital Pain Manikin study

[MyDD]

If you are an Android smartphone user and suffering from fibromyalgia, or rheumatoid arthritis or osteoarthritis and living in the UK, then help us improve the way chronic pain is measured.

We are asking participants to complete two questionnaire and submit a daily pain manikin report for 30 days via a smartphone app. As a thank you, we will share a summary report and a gift voucher.

Express your interest by writing an email to [e-mail]

[Jjflash]

Hi,im interested in this but its the first I've heard of this.I have suffered with chronic fatigue for decades and I have so much pain throughout most of my body.Id like to know plenty about this cos I've long term frustrations with how my ailments haven't been dealt with.

[MyDD in reply to Jjflash]

Thanks for your interest. If you fibromyalgia or RA or OA, then you can take part. Manikin is an exciting way of reporting chronic pain.

[Jjflash in reply to MyDD]

What happens next

[MyDD in reply to Jjflash]

Pain can be managed better, if it is measured in a better way. Consumer technologies, like smartphones can do a lot with digital data which can be used for range of activities, e.g., clinical decision making, better self-management, treatment effectiveness.

[Jjflash in reply to MyDD]

Would i have to travel there because I have a longterm health problem,cant drive and have not used public transport since this covid thing started and wouldn't feel comfortable travelling

[MyDD in reply to Jjflash]

This study is remote. No physical presence is required at any stage. Please send email to [e-mail] and someone will pick up from there. Thanks

[happytulip]

It's a shame it doesn't include lupus as that's systemic inflammation especially of the MSK system. Was it not included for a reason?

[MyDD in reply to happytulip]

As there is no valid and reliable pain measurement tool that can be used at scale, we wanted to validate it with specific conditions first. To achieve scientific rigour we picked three conditions at this point. Certainly, going forward we will test this tool with wider MSK community

[happytulip in reply to MyDD]

Thank you for explaining.

[Loramay]

I have just completed 30 days of pain manikin and it's really easy to do but in future hopefully it will help us