27 with no inferior vena cava

[GoFly]

Please help me with some doctor referrals. No one really wants to touch this as they don’t seem to know what to do. I have now had 3 surgeries and now have another clot. I’m a pilot and have sacrificed much for this career. Begging for help with this situation!

[Bevvy]

Am not sure how much help we can give on this site. We are all people who have a variety of pain conditions or look after someone who does.

We are not professional doctors. There may be one or two people who have same condition and can advise. I think really it is down to either Gp to advise re consultants/hospitals or you will need to look for any hospitals that can offer some treatment.

For blood clots I would think you need blood thinners and there are plenty of teams in hospitals for this. No idea about no inferior vena cava - don’t even know what this means. Sorry.

Hope you get some answers.