Looking for a friend

[Freedom57]

I’m 57 years old with Peripheral Neuropathy, pain level changes and moves every day. Lately my hands have been going numb a lot

[Queeniz]

How you doing ?? I sent you a pm if you want to talk message me !!! 😻

[Marshall64]

I have my index finger on my hand go numb. A doctor did a nerve conduction test and found the culprit in my shoulder. I'm going to physical therapy and will be getting some nerve blocking shots. After that I may get stem cells from my body that will be injected into the tear in my shoulder.

There was also pain in my shoulder and neck. Physical therapy has been working for me. I hope things work out for you.

[PainConcernHelpline Moderator Community Champion Pain Concern]

Hi Freedom57 ,

Thank you for your post. I hope you will find many friends in our online community! It could also be worthwhile checking with your doctor to see if there is any pain support group in your area you could join in person (perhaps post-coronavirus). Many people find that having a community of people who are going through similar things can help a lot.

Have a great weekend,

Moderator 3 on behalf of Pain Concern

[AngelMoon]

Hi

I’m nearly 53, still awaiting diagnosis of anything, up to now I’ve been told it could be CRPS. I woke up this morning with both hands numb, my feet burn at night and I never know from one day to the next what pain I’ll be in, if it’s bad it’s unbearable. I’ve gone from being fit and healthy, two jobs, dance class, yoga, to this.

Ah well, I still have a pulse

[Hidden in reply to AngelMoon]

Hi there, with your hands going numb have you any problems with your neck why I'm asking is that I was told I had crps which I didn't it was eventually down to my neck .

[AngelMoon in reply to Hidden]

I had a diagnosis of cervical spondylosis in 2013. It took me 3 years to get that diagnosis..I was fobbed off that many times and told I just had a muscle spasm that was causing all the pain.

Every health professional I’ve seen so far and told about my diagnosis of CS has ignored it!

I’m still waiting for my MRI and had to literally beg them to schedule me for a head+neck and not just head alone. I’ve diarised all my daily symptoms as they tell you to do but then the medical professionals still aren’t interested.

I can look back and see my decline after I fell 12 foot onto stone when I slipped roping a narrow boat up before a lock. I miraculously didn’t break anything but lord it hurt. Then I just got up and carried on.

But from then on I started having problems that I didn’t twig to until it got really bad...I’d stumble getting out of a car, all sorts of stuff. I started sweating uncontrollably for no reason.

So,sorry for the waffle Longsider but thank you so much for your message. I believe it’s my neck as well.

Blessings to you.

[Cb1963]

I sympathise with you,I have had PN for over 8 years,but unfortunately my symptoms are getting worse, I'm 58 and I have vitamin B12 deficiency problems has caused even more symptoms of late,so I don't know if you have had your bloods checked for this,the symptoms are very similar, but obviously you don't want to add anymore health problems to your condition,its important not to smoke, or drink, and sometimes people who have had stomach problems can have B12 problems, or take long term omeprazole, or something similar,its only through this forum I have managed to gather this information, but trying to get regular B12 injections is another subject, and these are important for neurological factors,I found that with my PN if I got stressed out the symptoms got worse, there is medication available that can help for sleep, and it does help, I understand how you feel, so seek medical advice from your doctor,I wish you the best for the future, thanks.

[Freedom57 in reply to Cb1963]

I think my PN was caused by Celiac, because I wasn’t getting the nutrients by body needed, after my diagnoses I got vitamin infusions

Have you discovered anything that helps you?

[Cb1963]

Not really, I put lidocaine patches on my legs, and take pregabalin, and I'm on 45mg of mirtrazapine at night to try and get some sleep, but,unfortunately I feel I have ended up with a double dose, as the symptoms are getting worse, my muscles start twitching nearer the time I need my injection, I feel more and more exhausted, the burning in my feet and pins and needles is out of control, I have ended up with tinnitus, this all controllable if my doctor had kept me up to speed up wih the B12 injections, and my hands are the same, and in winter they go worse with the cold weather, I to denied my body from vital nutrients, and ended up with neuropathy, and trying to find a 'cold' spot in bed for my feet, well you know how that goes impossible lol,yes it's a nightmare I was reading an article on the teletext pages a few months ago, saying that people who were having chemotherapy treatment and were receiving acupuncture, were getting slightly positive feedback from having this done for neuropathy, however I don't know if this was a trial, and whether its available to all types of patients, maybe it is something that the health service is considering to be used in the future, if not maybe worth your while going private, I know how intense the pain is,and because nobody can see it,we are just invisible sufferers, I hope this little bit of information helps you 🤗

[IChaseDreams]

Hi Freedom57

Have you tried an ice pillow for your feet? Are you in the UK ?

[myrlyn]

Hi, I have celiac also and wondered what vitamin infusions you received and did they help?