pain unbearable coming to the end.

[Elsa66]

Hi I am writing for a relative who is suffering from Pudendal nerve damage cause by an operation she had several years ago..She has gone down every avenue to get help. She has had nerve blocks and botox etc..She has recently had a lidocaine infusion injection which actually gave her a couple of days of relief. She has now been told to wait for at least 4 months before her next injection. In the preceeding years and in the last few weeks she has tried to take her own life because of the excruciating pain she is in. Can anyone please shed any light on why this lidocaine injection cannot be given sooner and if they know of any other possibilities to help my relative.? .I do not think she will be with us much longer if this pain continues..She has said she would be satisfied to even get rid of the pain by some margin until it was possible to live some sort of life..thanks.

[Bananas5]

Go for physical therapy. It relaxes and stretches the muscles at the lower end of your pelvis, known as the pelvic floor. This can ease pressure that may irritate the pudendal nerve. If pudendal neuralgia makes it hard to control your bladder or bowels, physical therapy can help with that, too.

Try prescription medication. Muscle relaxants may help relieve symptoms of pudendal neuralgia. Drugs used to treat other conditions, like depression or epilepsy, might also help.

If these don’t work, your doctor may give you a shot of medications that numb the nerve or lower inflammation, which lessens pressure. These may take several weeks to fully take effect.

In rare cases, your doctor may recommend surgery to remove anything that presses on the nerve. You may also get a small electrical device put under your skin to stimulate the nerve and interrupt the pain signals it sends to the brain.

All this should be discussed with your relative's GP and Consultant. Tell him about any black thought she is having.

x

[Elsa66 in reply to Bananas5]

Yes everything you have mentioned has been tried already..She went to the top hospitals in London and was found to not be a suitable candidate for the electric pain device that they put near your spine..We have been down every avenue and she is on the top doses of fentynl patches and lots of other medications..tramodol, diazepam, anti depressants, anti sickness meds etc. thanks for replying.

[Bananas5 in reply to Elsa66]

A good CBD?

x

[GreenHunter]

Hi there. I use lidocaine patches on a daily basis. I don’t know if they will work for your relative and they do not rid me of pain however they do help.

[Elsa66 in reply to GreenHunter]

Oh that sounds like a new idea..She is currently on the highest dose fentanyl patches and other pain meds etc..But I will tell her about the lidocaine patches too..thanks.

[GreenHunter in reply to Elsa66]

Hi there, I was given the lidocaine by a pain management specialist to use in conjunction with Ketamine. However lidocaine patches are not approved in the UK other than for use for shingles. But my specialist gave me them to try. And they do help. Funnily enough the Ketamine didn’t. It just got me off my head which I had no interest in. I was given the Ketamine in a trial basis also as it isn’t approved in the UK. What works for one person doesn’t for another & it can be frustrating trying to find something that works. I really hope you do find something. Good luck

[Elsa66 in reply to GreenHunter]

Thankyou so much for your reply..That is all very helpful information..I was wondering about Ketamine and at least I know it won,t really be available in the UK. I will tell my friend what you have said so at least we won,t get our hopes up that we can get these things in the UK..Great info thanks again.

[stenosis49]

Hi Elsa66, this sounds very much like me , I had surgery back in 2012 prolapsed bladder and rectum plus mesh for slight stress incontinence, I was in such pain at around week 5 recovery that I was told at my 6week check up its early days still and I said that something wasn't right I was constantly itching and burning and the pain was unbearable I had never experienced this kind of pain before , I couldn't live like this I was also wanting to take my own life back then cause no medical persons I saw knew what to do for me . sent to pain clinic was prescribed slow release morphine and tramadol, this didn't make the slightest difference. was getting angry by this time with one thing or another. I knew it was the mesh causing this terrible pain in my rectum ,vagina and down the back of my leg just like sciatica feels. I went through so much to get where I am today. nerve pain can drive you to insanity trust me I know. so here's the good bit I asked my dr to refer me to London and after my consultation and surgery to remove this mesh I was put on pregabalin and amitriptyline together, wat a difference this has made . I have quality of life but still get the pain called breakthrough pain now and then but what a difference it makes believe me. the breakthrough pain is just a reminder to me of how bad the pain really was and still would be if it wasn't for these 2 meds. dare the dr to change this at any time in the future

[Elsa66 in reply to stenosis49]

Thankyou so much for your reply..Its great that they removed your mesh..I have seen the mesh scandal on tv..Only thing is my friend has pudendal nerve damage..She has had pregabalin but to no avail..I will tell her about the amitriptyline also,,thanks again.

[GreenHunter in reply to stenosis49]

Hi there. I used tramadol slow release 80mg and also the 50mg tablets. They had no effect at all on my pain however Oxynorm did. I took 2 x 10mg tablets with Paracetamol & it did help. I know how you feel about pain. Doctors & specialists have generally never felt this pain so they follow a pain pathway and gradually change & increase doseage to try to help with pain and then change the drug if they cannot get a result. I hope you find something that helps. Good luck

[gamesamui]

Sounds like a good case to apply for the use of cannabis oil, from your dr, great for nerve damage and helps me cope with my constant pain, I visit Barcelona especially for a pain relief break/ holiday.

[VictoriaWebster]

I to have nerve damage and had my operation in 2002 but still suffer with chronic pain I have injections which help short time then it returns I have a wonderful consultant that goes out her way to help but the pain is mine when I'm home and sometimes I'm in that black hole I have a tens machine which really helps me along with cocodimol and light exercises

[Elsa66 in reply to VictoriaWebster]

Thanks for your reply and I will tell my friend about the tens machine idea.

[Elsa66 in reply to VictoriaWebster]

Thanks for your reply..I will find out about the tens machine for my relative.

[Hidden]

I have nerve damage, 12 months after getting nowhere with doctor I tried yoga enema therapy, after a few days the pain subsided. I still have to use enemas occasionally as I have no feelings to have a movement, which caused the pudendal nerve pain in the first place

[johnsmith]

Take your relative to an Alexander Teacher. See if that makes any difference. See a McTimony chiropractor and see what they can do.

There is something called a stress breakdown point. Stress just below the stress breakdown point can cause difficulties but is manageable. Above the stress breakdown point the slightest increase in stress will cause things to fall apart. The two therapists I suggested will not cure the problem, but what they will do is help remove the stress on your relatives system to below the stress breakdown point and enable her to start to cope constructively with the problem.

The next step is to engage in meditation and mindfulness. There should be a Buddhist group in your relative's local area where she can instruction and help to practise these disciplines. The will help change the emotional problem of pain. It will not change the presence of pain. Changing the emotional aspect will change unbearable to bearable. It will also enable your relative with practice to seize the moments where better quality of life happens to occur.

[Elsa66 in reply to johnsmith]

Thankyou so much..All very helpful and yes we do have a Buddhist group in our area..She was going to join last year so I must remind her again..thanks.

[Hidden]

Medical marijuana.... its worth trying.When all my options ran out I went that route and Chinese medicine. Never thought Id do either.. but really glad I did. Sending a huge comforting hug to ur relative.. with the hope that they know they r not alone. n hope they find some relief.

[SecretlyDisabled7]

Some injections also are hyaluronic acid and I haven't tried them, but understand that these help. Looking at the info below, I was wondering about a nerve block.