Central pain syndrome

[Singinglady1985]

I’ve been living with cps since 2013 medication still not working not sleeping either just so frustrating

[jeabgaff]

Sorry to read about the frustration you are feeling so can I start by sending sympathy? I just wonder whether you have ever looked at the Pain Concern website. There are details of their regular radio programme called Airing Pain and programmes 94 and 95 are all about crps. Hope you find the programmes helpful.

[Hangel]

I’m really sorry to hear about the pain and frustration that your feeling, I can understand as I suffer from something similar and I’m take a number of different pain meds that most don’t help and don’t sleep either, it affects many areas of my life and it’s more than just frustrating, the pain can make me cry at times and my mobility is badly affected so it affects lots of areas of your life doesn’t it? I really feel your pain. My pain specialists keep trying different drugs and pain patches to see what will help and some do (a lot haven’t or have had unpleasant side effects) but we’re still trying different drugs at the moment and I’m hoping new ones will work better. Stay strong and good luck to you xxx

[waylay]

Have you had a pain management course? I found it really helped me.

[Singinglady1985]

Yes it didn’t work for me

[shopgirl2007]

I not heard of this is it different to fibromyalgia ? Or chronic pain cyndrome as its also known as

[Singinglady1985]

It’s different from fibromyalgia it’s more excruciating pain all over the body