Need advice

[Zander01]

Hi. It's me again. Well just spent the last week I hospital. After plastics team worked out that my problem was no longer their problem, the chronic pain unit came to visit. I apparently have erythromelalgia. Sound familiar to anyone. Any advice?

[ITYFIALMCTT]

Commiserations as that sounds wretched. I wonder if you'd be well advised to talk to one of the volunteers here: erythromelalgia.org/Contact...

[Jenles]

I agree with the other respondent. I just Googled it and it sounds pretty horrible but, although rare, there are clearly others around with the same condition.

I do hope you receive relevant advice and help very soon.

God bless you

[Zander01 in reply to Jenles]

Hi. There. Thanks guys

Curious. The Web site yoy gave I note is in the USA. I'm in Oz. What do I do?

[ITYFIALMCTT in reply to Zander01]

I wonder if the organisation would know where to look for advice in Australia if you were to email them?

"CONTACT [e-mail]

for offline support services and help with all TEA related questions"

They also seem to have a Facebook page where you might ask or participate? facebook.com/erythromelalgia/

[Zander01]

Thanks so much. Will give it a try. Am I able to stay in contact if I get stuck?

[Jenles in reply to Zander01]

You can always get in touch