Pain in hands and other joints...???

[DISC]

Hi, suffer from Ehlers Danlos Syndrome, have done all my life but have been suffering with the pain for nearly 15 years. I also suffer from severe gastroparesis. I have been told that I propbably have fibromyalgia also. The pain in my joints is so severe now that in the mornings I can't use my hands. They are so painful. They burn and feel swollen during the night. My feet, knees and ankles also throb and it is painful to walk on them. Now my ebows and shoulder is causing increasing problems. Does anyone else have similar problems? If so, what is your diagnosis? I would appreciate any feedback as I am struggling with coping with the pain, and also knowing what is wrong.

[Hidden]

I'm sorry you are struggling so much at the moment. I do know how you feel, I have EDS too and struggle with painful hands in the morning. I'm waiting for a carpal tunnel operation at the moment, in a hope that that will sort out my hands. I really have to limit the amount of repetitive movement with my hands during the day otherwise I will be up all night with swollen painful hands (I describe the pain as toothache in my hands)

Over the last years I did have steroid injections in my wrists what really helped (for about 6 months to a year) but unfortunately I'm on my limit of those so operation is next. I'm a bit worried, because I need my hands for walking as I get around with walking sticks. But it will be wonderful to be free of the pain.

Hope you get some answers and a solution for your pain. Hugs 🤗

[spider555]

I've had a carotid dissection. Have pain in my neck and pain on the other side...

No genetic testing though.

Got fibromyalgia is more like burning Hell