burning feet: my feet are hurting 24/7 now... - Pain Concern

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burning feet

oldblue profile image
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my feet are hurting 24/7 now . the dr. said I had preveal nueophy or something that soundef like that.. said there was nothing to do for it. has anyone had this problem ? old blue

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oldblue profile image
oldblue
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58 Replies
Circus12345 profile image
Circus12345

Maybe you mean peripheral neuropathy, old blue? Sorry to hear this, it sounds very painful. My husband also has this, but his feet don't hurt 24/7, he says it feels like he's walking on marbles. His doctor said to do the things in this Mayo Clinic article: mayoclinic.org/diseases-con...

I hope something here might help you!

Stillwalkin profile image
Stillwalkin in reply to Circus12345

Wear socks at all times.

Sallyk42 profile image
Sallyk42

Do your feet burn or hurt. I often have boiling hot feet but not overly hot to touch. I run them under cold tap as it's always when I'm in bed

Littlesheilacox profile image
Littlesheilacox in reply to Sallyk42

I always get it worse at night 🌃 it wakes me up often it's the bit that if you were to draw around you're foot it would be the bit on the edge of heel touching the floor ... Hard to describe tbh ... I've been used to the frozen cold foot but this is something else !!!That's24/7 but the burning is mostly nightly varying degrees of pain but it's intense ,,, Thanks for posting😊

Stillwalkin profile image
Stillwalkin in reply to Sallyk42

Use a mint salve.

Baileydog profile image
Baileydog

Hi ,I'm sorry to hear you feet are so sore. You sound like mine are, I went to g p with them last week and she said it is nerve pain and prescribed amitryptyline . I was expecting something like codeine or that type of medicine but she said they don't work on that kind of pain but amitriptyline are good on foot nerve pain. I haven't started them as I'm having nerve blocks done on Monday so want to be aware of my pain. I'm not sure wether you would want to start something like amitrip but it's an option .

Matrix profile image
Matrix in reply to Baileydog

I take them but they not helped mine but I have been taking them for fibro for years so they may well work for you .Hope so xx😇

Littlesheilacox profile image
Littlesheilacox in reply to Baileydog

I hope nerve blocks are the answer for you ,I no exactly what you are going through,I wish 🌠 they'd offer me a nerve block,Please keep me posted 😊

Baileydog profile image
Baileydog in reply to Littlesheilacox

Sorry ,my reply was a little misleading. The nerve blocks are for puedendal nerve . My feet are still so painful but I didn't want amitryptyline dying down my pelvic nerves until I see if the blocks work .

Sorry for the mix up x

Sandra

derek1 profile image
derek1

Gabapentin or Pregabalin are normally prescribed for nerve pain; your GP should be aware of this.

Littlesheilacox profile image
Littlesheilacox in reply to derek1

These drugs are very bad 👎 they are renowned for losing teeth,putting on weight etc, I've been on them for cauda equina syndrome and amitriptylene but my feet burn badly,Ones encased in ice and now the burning around my heel it's worrying me I may be having op no 4 !!!! I wish 🌠 you well

Juliewats profile image
Juliewats in reply to Littlesheilacox

Ive been reading your post and i have caudia equina too i had my op in 2009. Caused permanent nerve damage in feet and legs as i was left 2 days in hosp waiting for emergency operation they said . I feel if had not been left i t maybe would have not been as bad 😢

Littlesheilacox profile image
Littlesheilacox in reply to Juliewats

Hi there,,well it's really nice to chat to someone who knows what you're going through isn't it?!!

Are you in a support group for cauda equina ?? They say it's rare but more and more people are joining every day!!!

Can you walk 🚶 or wheelchair ♿ there are so many differences between us all as it's the time that the nerves have been compressed that makes a difference,,2 days is ridiculous,no excuse ,I waited a long time to get the all important scan but too late .. Damage done but at least they operated the very next day with me .

Some days I sleep 💤 all day depressions set in as my lifestyle has changed so much ,, I can't even go into a supermarket without having to leave as it's just too cold ,, people don't understand what you mean they just think get a grip its only a cold foot ..NOT.... IT MAKES YOU WANNA KILL !!!! NOW ITS MY CLOTHING ESP SOCKS I CAN FEEL EVERY SINGLE THREAD ITS HARD TO EXPLAIN well I can't explain anyway !!

Thankyou for letting me know about the nerve tests that's something I will be on to asap !! Lots of healing hugs your way xx

Juliewats profile image
Juliewats in reply to Littlesheilacox

Hi sheila i walk with crutches my op was in 2009 . I have foot drop and have wear splints comstant . Feet hurt so much too all time . Bladder /bowel problems .

Juliewats profile image
Juliewats in reply to Juliewats

Sorry wasnt finished posting. How awful for u to have waited so long. The pain is just awful isnt it i take pregablin does not do much :( im not in caudia equina support group would like join one .ye its rare i was told by doctor .i was in rehab for 5 month just now depression hits too /anxiety ...the cold feet can relate too . Like ice blocks and horrible feeling . And yes some do not get how bad it can be .like people who.have no pain .... this pain is like aggrivation and yes feeling like screaming . .do u use ♿or 🚶 thank u so much for your reply x it is nice know am not alone

Littlesheilacox profile image
Littlesheilacox in reply to Juliewats

Hello Julie you are not alone in this ,,,If you want to join a cauda equina syndrome support group I can add you..... They are so helpful and full of people like us ,

I was in wheelchair ♿ but now walk a little with a Cain but not often!! I have balance issues and foot 👣 drop too ,,Always falling in the shower but I had O,T come to my house 🏠 and I now have a bath chair 💺.. They are really good in wat they can offer you,commode bed hoist but most helpful to me was putting me on adapted property as I have steep steps inside and outside my house,,If you need anything like that just ask for an occupational therapist.

I'm only just getting physiotherapy after 7 yrs!!! They don't seem to give anyone any aftercare it's ridiculous,

If you ever need to chat or want to add me as a friend on facebook feel free to do so I'm here for you day or night,,,,much love my c.e.s sister healing vibes I send you're wayxxx MUCH LOVE ❤ XXXXX

oldblue profile image
oldblue in reply to Littlesheilacox

hi littlesheilacox, I'm old blue. I am the one who originally started the post about burning feet. I have not been on here for a long time because I have been so depressed over this devil given foot pain. I live in the USA. there are not many people from the USA uses this site. I am 71 years old and have not ever suffered anything like this in my life. I have many more day's behind me thank God than I have before me and I won't have to worry with this anymore. my wife said I could use her face book acc. to chat on if you would add me as a friend. she is listed as Ann Camden. if not that will be ok. I hope you the best of luck. old blue....

Littlesheilacox profile image
Littlesheilacox in reply to oldblue

Hello there oldblue so sorry for not replying sooner I have been having problems with my phone and getting back on this site ... I would still like to be f.book friend's so if it is still ok to add you that would be great 😊... I hope your well 😊 xx

Stillwalkin profile image
Stillwalkin in reply to Juliewats

Yes it has to be operated on within I think 36 hours for the best results.

cyberbarn profile image
cyberbarn

My son had burning pain in his feet and the GP put him on a low dose of amitriptyline and it knocked it in the head. It took a few days for him to get used to taking it (a single dose before bed) but it worked a treat. Good luck.

Galadriel1 profile image
Galadriel1

H, I had burning feet, this is one of many symptoms of a B12 deficiency. Look up the symptom list on the Pernicious Anaemia Society, you may have PA/B12d as this is often missed and misdiagnosed by Dr's who do not understand it as it is simply a vitamin but a deficiency that affects the whole body. It is often misdiagnosed as conditions such as Fibromyalgia (due to pins & needles/numbness), ME/CFS (due to the extreme fatigue) and even MS (due to the nerve damage and muscle weakening). Too many symptoms to mention here.... If it is B12d then it is treatable so it is worth doing your own research into your numbers. Start with the symptom list and then you can ask for a copy of blood results and see for yourself what your B12 level is, Dr's tell you that you are in range even if only just in range and it is also known that the 'range' in UK is set ridiculously low and people on bottom are very ill. Lots of info on Pernicious Anaemia site here.... Good Luck. P.S. I am treating myself every other day and I have a lot of improvement, including my pins & needles disappearing and finding energy to do things, not all the time but getting better every day. :-)

Nickidc profile image
Nickidc in reply to Galadriel1

your post is very informative - thank you. I have been tested for VitB12, but didn't manage to get the actual result, I had to really push for them to give me any figures!! and at the time was v interested in getting an accurate vit D level. anyway, you mention you are treating yourself every other day, can I ask how? presume with supplements - would be interested in knowing how much,

thank you,

Mary-intussuception profile image
Mary-intussuception in reply to Nickidc

Please do ask again for your blood tests results and all the normal ranges in brackets. If you phone for results you can ask for all the details to be read out to you while you write them down. OR you can call in and ask 1 for a print out.

I have just had blood tests for B12, VitaminD, Ferritin and Folate. They are all low! Folate is below noreal range. I'm seeing GP tomorrow.

🐥

Galadriel1 profile image
Galadriel1 in reply to Nickidc

Hi, B12 deficiency or Pernicious Anaemia is treated with injections of B12 as if you eat meat and dairy products you should have plenty and therefore it is not diet related (vegan, vegetarian) showing you have an absorption problem so tablets cannot be absorbed in stomach. I am treated at Dr with Hydroxocobalamin every 2 weeks and I inject myself every other day in between to aid the healing of the nerves and the many neurological symptoms I have. I am relieved that it is B12 and not one of these other conditions because it can get better...... that is not the case for some of the others so you have nothing to lose by looking into it via the Pernicious Anaemia Society and check out if it could be a part of your health problems.

Nickidc profile image
Nickidc in reply to Galadriel1

thank you for taking the time to reply, it is appreciated

Gram214 profile image
Gram214

Oh my God YES ! I am in the same shoes...( actually can barely wear any ) I have Crohns, Fibromyalgia ..different types of arthritis, and they have never tested me for neuropathy. But I suffer so much with this for years every one worse than the previous year.

No meds have really helped and I am even on a biological ! I don't think anyone can really understand . It's like they think..." Your feet hurt..? big deal." Ughhhh

Mary-intussuception profile image
Mary-intussuception in reply to Gram214

Hi Gram 214

Have you considered asking your GP to refer you to a Neurologist or Foot Consultant or Orthopaedics? I think any of these can arrange a Nerve Conduction Study.

Do you have any problems with any vertebrae in the Lumbar spine? Any worn discs?

Did a Rheumatologist diagnose the Fibromyalgia? Are you still under him/her? If so they can arrange the Nerve Conduction Study and if Peripheral Neuropathy found you should be seen by the Neurologist who may arrange MRI scan of lumbar spine.

🐥

Gram214 profile image
Gram214 in reply to Mary-intussuception

Actually years ago my GP diagnosed the fibro. He was an old time Dr. But knew his stuff. Elderly sweetheart. He wasn't one however to push you into seeing different specialists. Knowing that both my hubby and I have many health problems and both already see some specialists. Oh..and we and live rather far from the city. ( where all the specialists are located ). He treated me with all the meds he could think of..none ever worked. Finally strong pain meds which I'm still on just to cope. Then he was " let go " from the practice.

A fairly good woman replaced him..she finally referred me to a podiatrist..AKA Foot and Ankle Center. . .what a joke ! He claims I am " walking wrong " ! I am almost 66 and have walked wrong all this time. The pain causes me to walk this way ! All he did was send me for therapy next door to his office . Therapy was like a day at the circus. All they did was some exercises and foot massage. Then after that the next step was to be hydrotherapy. I simply up and quit. Not so much as an X-ray..of my crooked old feet ..let alone MRIs or nerve conduction tests. I was just so discouraged. My copays apply each and every visit also..which for specialists is rather high. Specialist for feet...one for GI..eyes...rheumatologist at one point many years ago for my knees. maybe I need to see one again. $$$$

I recently have been diagnosed with osteoporosis of the spine and have backaches daily. No tests suggested for that either. Do you get the feeling I am very discouraged. ? Very sorry for rambling on..thanks for the reply. XX

Mary-intussuception profile image
Mary-intussuception in reply to Gram214

Ramble on all you need. It is disheartening what we have to go through with NHS. I had appauling treatment from surgical appliance people. Quite offensive actually.

It's a pity they offended and stressed you out so much before you got to hydrotherapy. I wanted that but no one's offered!

Strange coincidence - I was just thinking last night how I don't remember my late Mum ever having a DXA scan and wondered how she was diagnosed with Osteoperosis. She was though, and treated by her GP also.

My husband had a DXA scan. There was an 18 months waiting list. You could enquire if you wish but if you already know you have Osteoperosis? ??

You could I suppose find out where they do it for your area. Ours is not at local hospital but another town.

I wonder if you have any osteoarthritis (Mum had both) of the spine? Any disc degeneration. Might explain the neuropathy?

These are things you could bear in mind to consider if you feel up to it (asking for referals) sometime in future. But it's a case of diagnosis really - doesn't solve the pain issue.

Have you ever considered phoning the Osteoperosis Helpline or the Arthritis Helpline?

X

🐥

Gram214 profile image
Gram214 in reply to Mary-intussuception

Good Morning to you ! Hope you had a good sleep !

I have had the Dexa can..that's how my osteoporosis was found. That's one test my GP did order for me. Must be cheap...so insurances don't mind ? Ha Ha

I do have osteoarthritis.. Ive had only a few XRays on my knees and shoulders and neck. My previous GP also thought Rheumatoid. ..but sero negative. Then too...with Crohns..there's a type of " Arthur " specific to that ! I'm just a mess.

You know...you hit the nail on the head . Diagnosis is one thing..but in the long run what does it solve as far as pain . Sighhh

Have a good day my friend ! 😊 💕

Littlesheilacox profile image
Littlesheilacox in reply to Gram214

Hi there ,, im sorry you've been treated like i have i wouldn't have cauda equina syndrome if they'd only done an m.r.i scan leading to 3 ops They've just refused me hydrotherapy,,As I was sure it would help They have put me in leg classes first bit of physio in 7 yrs!!!!

I've lost so much muscle in my calf the pain is unreal there too and foot drop now this burning pain around my heel the (bit that touches the floor )

I think I will try the local pool but its all the people there puts me off as I've put on a lot of weight since being inactive for so long.. I would take them up on their offer you never no !!?So NO YOU'RE ENTITLED TO FEEL DISCOURAGED,,,,I DO !!

Mary-intussuception profile image
Mary-intussuception in reply to Littlesheilacox

Hi Littlesheilacox

Why have they refused you hydrotherapy? Surely it's the least they could do after what you've been through.

Can't you query the hydrotherapy and keep asking, pestering?

Would the water be warm enough in the local pool? I wouldn't be overly concerned about giving it a try. Just treat yourself to a new swimsuit, then you'll have to go! Just remind yourself how beautiful you are and go for it. I used to go early morning when only a few people there. But everyone had to do lengths and as I got to the shallow end my left leg (my weak side) was dragging along the bottom of the pool.

All those people there may not even notice you!

🐥

Ps

Are you under a Neurologist?

x

🐥

Littlesheilacox profile image
Littlesheilacox in reply to Mary-intussuception

Thankyou so much for your reply,I'm not going to let them say it's not enough for me as I've lost so much muscle but I will ask again at least they've put me in leg classes ,,That's something at least!!! It's a good idea to go in pool wen there's less people around but its hard f me to do that as I don't get any sleep 💤!!! I've asked again to be seen in the hydrotherapy pool but I won't hold my breath,It's been hard to get anything done here in Wales .My doc isn't that clued up wen it comes to cauda equina syndrome and it shows wen u see other people who are on stronger pain killers and allsorts of breakthrough meds ,I'm lucky to get my pregablin that I hate .I've just joined the leg classes in physio but find it a bit hard as I suffer with agoraphobia etc.!! Thanks so much for your help with this I send you gentle ((((((hugs))))))))

Mary-intussuception profile image
Mary-intussuception in reply to Littlesheilacox

I'm in South Wales!

Our NHS is ever so slow. It needs an injection of common sense.

An A&E doctor tested me for cauda equina 4 years ago when I couldn't move and couldn't feel my legs but it wasn't that. In my case, it was because my bowels were full (I have Intussuception & large Rectocele) & as I have weak muscles and total pelvic floor failure this put pressure on my spine. He gave me Diazepam as a muscle relaxant as he thought it was Sciatica.

I really don't know how you cope with cauda equina syndrome.

You must be very brave.

xxx

🐥

Littlesheilacox profile image
Littlesheilacox in reply to Mary-intussuception

Ahh bless you for you're kind message,It's my opinion if my doc had done the necessary tests I wouldn't have it,,As for being brave you just have to think about other people who are worse than yourselves,,My pelvic floor is very weak and partial prolapse from pushing on the loo ,,,The worst part of it for me is the catheterization,I hate it and I was always very active before now I don't go out!! I'm on diazepam 30mg daily and tbh it's been a good idea,,,I hope you get on the road to recovery,,,Love n light healing hugs ... She xx

Littlesheilacox profile image
Littlesheilacox in reply to Gram214

I replied below Hahaha only me !!

Littlesheilacox profile image
Littlesheilacox in reply to Mary-intussuception

Hi gram ,please can I ask why you mention worn discs or lumbar spine ,My feet 👣 burn now ,new symptoms I'm used to the frozen cold foot but now this ,I've had 3 ops on lumbar 4/5 S 1 do you think it's related then? Many thanks 😊

Nickidc profile image
Nickidc

Has anyone tried / heard of Scrambler therapy for peripheral neuropathy? mentioned on Mayo clinic website and can apparently work for some patients. anyone heard of it being used in the UK?

thank you,

Matrix profile image
Matrix

Old blue I have that and it hurts so bad ,now getting it in fingers too.I get burning feet sharp stabbing pains in toes and now I have plantar fasciitis which feels like on your flat heel that you are walking on marbles .Hope you get some better help .xx

Cb1963 profile image
Cb1963

yep if it's peripheral neuropathy you've got I'm not overly confident that you'll ever be rid of the symptoms you now have and if your at the early stages the pains might become even worse,so if the pains are bad ask to be put forward onto a pain clinic,as there's different medications that are available or try and book a double appointment maybe with the GP to tell you witch way forward for pain relief,I understand your symptoms as do with all the others on this forum,and descriptions of PN are endless,I've suffered now for over 5 years and it's not a nice and it's bloody painful,so I suggest a healthy diet,including abstaining from alcohol and smoking,this can help your cause and its a very difficult condition to treat,I think my problem is that I can't see anything,and then others think along the same way so it's a physiological thing as well,hopefully you'll get a definitive answer whether you've got PN,or even PA,there's various exams/test to give you and then you can get yourself some treatment to help you one way or another,good luck for now

metalbones16 profile image
metalbones16

Hi.. Hope you're feeling a little better today. It's just a thought.

Have you had x rays or CT Scans?

In 2006 I had a similar problem. I kept mithering the DR to say that ointments, potions and pills weren't doing anything.

I was sent to hospital for a scan. The results came back as Arthritis in my feet and ankles.

secondhandrose2 profile image
secondhandrose2

My feet are also very tender and sometimes it hurts so much to walk that I dread having to make my way to the surgery, or back to the car though other times they are ok. I have fibro as well as other things but hadn't connected the feet problem to that! I have thought it was peripheral neuropathy and find Tramadol helps, I am on that for sciatica as well as Duloxetine for fibro.

mizzens1878 profile image
mizzens1878

Hi Old blue

my husband and daughter have the same problem the GP said it was peripheral neuropathy nerve damage my husband he was given Cocodomol 500/30 mg tablets he saw GP again and was told nothing can be done an the medication was stopped as did not help he now buys the strongest medication from the chemistry dose 500/8mg he had sciatca in his shoulder arm hand and 2 fingers were numb he had physiotherapy and medication he had worried if he had a stroke arm and id shoulder are ok but one finger is still numb no one suggested the pain clinic they try see what helps and can offer acupuncture also injections even sort out seeing Consultants if surgery if it's needed I have been in care of the pain clinic for 20years because I have a lot of damage to my body due to a road accident I was a perdestrian so I had a lot of injuries I am due to see the pain clinic on 16-5-2017 to get help as on good Friday I got stuck in the toilet I could not move my hips and back locked pain all over my legs when I try and stand the pain. Is so bad it goes to my legs hips and back I am having trouble walking I can only take small steps and need help to. get up I have to use crutches all the time as I have no feeling in the bottom of my feet its one of they things due to the accident I am sorry about your pain problem ask to see a pain relief specialist and tell your GP exactly how. it affects you IE: Physically and mentally if you are feeling depressed

hope your feeling. Better soon mizzens 1878

Vvalerie profile image
Vvalerie

Yes I am sorry to say I to have problems , my hands are numb & fingers painful & they hurt all at the same time, I also drop things on floor all the time through not feeling my hands ,drives me nuts.

My feet I could &I have sat & cried they are burning hot & numb ,& the worst is freezing cold sort of cold in my feet is so painful I have a heat pad to help at night , problem is I have on more than one occasion burnt the soles of my feet, I have had the tests for nerves & was given the news that I have D/ neuropathy in both hands & feet .I would think in your shoes make a double appointment with your GP , write your list of Questions , I can think of no good in asking for your blood unless of course your a dr , Dr are highly skilled in the Job, 7/9 years of training ! Why would any dr not give you any drug you needed !!!!!!!! It makes no sense ,t it I hope this has been of some use to you & wish you a Well & Happy life.

Life just is not far , I have been so unlucky I have 8 major health issues ! .Smile & take each day as , don't look at interesting sites , ask you GP which sites are the best to at, I use Diabetic UK::::::::::: we recommended by me DB nurse night night for now.. X

Littlesheilacox profile image
Littlesheilacox in reply to Vvalerie

Wow ,,This could of been me writing this !!! Soo similar I wear heat pads on my foot 24/7 I THINK I WOULD BE OUT OF CONTROL WITHOUT THEM,I NO THAT SOUNDS MAD BUT THE WAY IT FEELS IS HORRIBLE,FROZEN IVE DAMAGED MYSELF ON THE SIDE OF MY CALF SO MANY TIMES I THINK I HAVE DONE SOME PERMANENT DAMAGE SO BE CAREFUL,I'VE had THE BURNS ASWELL BUT I COULDN'T LIVE WITHOUT ANY you are the first person I have heard of using heat pads or even a cold foot they look at me crazy and say never heard of it !!! I hope YOU GET BETTER X

Vvalerie profile image
Vvalerie in reply to Littlesheilacox

Hi sounds like we are a right pair, my hubby also has cold painful feet & back pain, drives him mad ! the only place he can get warm is in bed with an electric blanket mostly in bed by 8 pm, does your frozen feet go up the kegs mine go about 6/8 inches it creeps up AGHhhhh ! Does drive me nuts . Hope you get sorted . Healing Hugs xxxx

Littlesheilacox profile image
Littlesheilacox in reply to Vvalerie

haha ,, wat a pair.... if we had one good 1 between us!! It's good to talk to someone who truly understands what you are going through!!! I have a electric blanket too !!

I think its the worst thing and best thing for me the electric blanket in one way it's great but in another it really shows wen u are out of bed so it keeps you there,,,Having to catheter I can't go back to the job I loved working with animals voluntarily as the cleanliness isn't there!!

I have it I patches up my leg also my privates,,Not good at all,the blisters from the cura heat not designed for use on skin that's neurologically damaged ,,I wear 24 hours a day why do they go rock hard after it sticks into you and causes cuts I cant feel oh the joys are endless,,,,Really good to chat to you and I hope your having a 'good' day today love to you're hubby .I send you positive vibes and healing ((((((hugs))))))She xx 😋

Vvalerie profile image
Vvalerie in reply to Littlesheilacox

Forgot to say I have Diabetic neuropathy in hands &I feet.

oldman1952 profile image
oldman1952

Hi there Vvalerie and all other posters to this thread, diabetes and peripheral neuropathy also with Fibro and other illnesses that can cause peripheral neuropathy. I would just like to put a little different proposal to you. Have you ever heard of Raynaud's syndrome? It affects all the body's extremities, including nose, ears and eye lids, but most of all the hands and feet. It has with it pain, stiffness, burning symptoms and numbness to throbbing. It is a the circulatory system problem where there is thickness in the capillaries and the veinules walls and constituents of blood has problems getting around the area effected. It can be all the digits or just one or two in the hands or feet. They can also be very cold or very hot and the colour often changes to a very red tinge where the effected area is. There is a treatment and the physicians use medication for high blood pressure and it helps open up the vessels that are too narrow. Hope this helps because there are quite a few illnesses that have this symptom of the legs. I am not sure where I read in a post today that a person has Sciatica of the neck shoulders and hands. Sciatica meads pain in the legs and only effects the lower trunk from the lumber spine and can cause urinary incontinence and other problems that are defined to that area. Oldman1952.

Vvalerie profile image
Vvalerie in reply to oldman1952

Hi , yes one of my on going illness is chronic back pain in both my neck / both shoulders, and lower back pain on going for last 22 years I have Sciatce in my left leg it's so ++++++ painful , and last week was told I have a Facet joint cyst, pressing on my nerve causing total numbness at times & severe pain,, I wobble or fall over as you never know iwhen it will go numb , can't walk only a few steps, but here's the thing , even when it's numb I still have extreme pain, makes no sense to me. One last thing I have Incontinence problems , but I try & stay positive.

Thanks for your reply.Vvalerie.

micmar profile image
micmar

My feet are driving me crazy they are scolding all the time and sore heels,and worse in bed, I cannot bear the duvet on them and have to stick my feet out of bed to get them cold. They were always cold before this last year as I have Raynauds, my hands are still cold but not my feet. I have a disc out in my lower back which is leaning on the Sciatic nerve where I have Scoliosis which developed about 5 years ago I was born with Scoliosis in the top of my spine. I have a cutting out of a magazine which someone has sent in about her heels are both sore, and hot, it suggests a problem affecting the nerve supply to the feet (peripheral neuropathy sometimes associated with Diabetes) or pain tracking down the Sciatic nerve from a disc problem in your spine. You may need scans and a nerve conduction tests to sort this out. I wish someone would sort mine out so I can get some sleep, but no one takes any notice. I wish you luck

Littlesheilacox profile image
Littlesheilacox in reply to micmar

I I no exactly where you are coming from there's nothing worse than sciatica the pain is unreal ,,,Also My feet are worse in bed even though I have the electric blanket on,one is frozen and the other the heal burns the pain wake's you up if you get to sleep in the first place lol.

I've not long had an injury to my fingers and had an x ray they said wow you're arthritis in them is rally bad i didnt even know i had any !! I'm wondering if I also have it in my spine hence all the ops ,, I do think its the spine compressing the nerves again that's what cauda equina syndrome is basically.Been waiting for 2 weeks for NEW catheters ,it's just ridiculous!!!! Thanks for letting me know about the nerves test SOMETHING I WILL BE ASKING FOR,,I DIDN'T know you COULD GET THEM,It's been CRAZY TRYING TO GET ANY TREATMENT SO NOW I NO THIS I'M DEFINITELY ASKING I'M GETTING ELECTRIC SHOCKS NOT ONLY SHOOTING BUT IN ONE SPOT ...HAS ANYONE ELSE HAD \HAVE THIS ,?

LOVE to ALL XX

Littlesheilacox profile image
Littlesheilacox

Old blue they told me for the last 7 yrs there's nothing they can do as nerves play tricks etc but I've since found out that it is rubbish.... There are nerve tests,nerve blocks they can and do 'do' depending upon how much you get on to them,It seems we have to bother them all the time to get any help I will keep you posted on this as I'm going to be on there case as I can't take it anymore and I will cut my feet 👣 off ..... 😉 take care x

sianr profile image
sianr

Peripheral neuropathy is and can be very painful, e careful with your footwear ensure you have adequate fitting footwear. Check your feet regularly ensuring they remain healthy, no little wounds, be aware you're sensation on your feet will be reduced meaning you won't have the same feeling and can stand on things on the floor and not be aware. If you do have anything your concerned about ensure you see a podiatrist.

sianr profile image
sianr

Oldblue please take the advice of your GP amytriptylline is a medication in smaller doses which is used for nerve pain. It can be very successful in helping nerve pain. ALL medications have side effects and if you don't have any medication, discuss with your GP. People sometimes don't realise that their post comments can make others nervous and scared about medications, sometimes the benefits out weigh the risks. Medication's have different effects on people. I'm on a few of the meds described I still have my teeth and I have only put on a little weight as I have been on a see food and eat it lol.

Stillwalkin profile image
Stillwalkin

Try putting mint salve on your feet and a small fan

Stillwalkin profile image
Stillwalkin

I use to keep a wash cloth and bowl of water by my bed. I would wrap my feet in wash cloths to go to sleep. You could put on wet socks and then use a fan.

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