20 years of chronic pain

Hi there Jenles,

I'm so sorry you're in so much pain, I know what it's like and you sound right at the end of your tether.

The gabapentin is actually a really great drug, as mixed with opiates it magnifies their effect.

You say you're taking morphine, is this MST or a different preparation?

My pain is managed by mixing pregabalin (gabapentins big brother) with oxycodone. Both of these drugs are a improved version on the one's u mentioned in your op. Tell me, have u tried these or been offered them?

I paid to see my pain specialist so as to jump the queue, but you can also pick and choose your doctor and find one that'll be open to suggestions (if medically appropriate of course). It only cost me £100 and I'm on the south Coast so things are usually as expensive as they'll get in the UK. It's worth the investment as being in the amount of pain you describe is the pits.

If u you need me to clarify anything just give me an '@ mention' and I'll try to reply promptly.

Best wishes.

Hi Jenles

I agree with gindy I did the same I paid to see a private specialist and the help I got was fantastic. I also got a referral to have 2 spine operations done on my back on the NHS and it has helped tremendously, I still take pain relief and that helps me to get on with life. But the pain is no way near what it use to be as long as I keep taking my medication. So either push your GP to get a referral or go private. I wish you all the best of luck.

Jan101 xxxx

Hi Jenies

I saw a Dr Way and the other specialist was a Connell stone. They are both excellent in there field. Mr Way also lectures around the UK and possibly elsewhere. I live in the south east but I don't know where you live. If it's not to far away I would highly recommend them. I truly wish you lots of luck as I know before I saw them I could hardly walk with the pain. Now I am up and about but still on my medication for pain relief. I even been done Christmas lunch and boxing day lunch which I thought I would never be able to do this year as I have been in bed for nearly 1 year. If I can be of anymore help please do not hesitate to contact me. I truly wish you all the best and take good care of yourself.

Jan101 🙏 XXXX

Jenles i paid to see the same pain specialist we see on the NHS here in the south east, but jumped an 18 month waiting list.

Do some research into pain specialists nearby where u are. But definitely be prepared to travel to see the doctor of choice.

Good luck.

Well it's best to follow medical advice Jenles as I know nothing of your situation really. Even then I'm not qualified to give you sound diagnosis, just experience of my own pain issues.

Whatever you decide, I wish u the very best in your search for a peaceful pain free life.

The trouble is with my new GP I'm not sure how much is medical advice and how much is financial considerations. I guess it's a case of wait and see. Thanks for your concern and comments folk.

Hi jenies. I feel your pain as I've been suffering for 20 plus yrs with chronic pain. Mine started in my knees fast forward a few yrs,operation and operation each telling me they would make me better but made me worse now nerve damage down my right knee, my knee I can't Kneel on. Fast forward a few yrs now got shoulder back hips and feet. Now gp has told me I have fibromyalga. I like u take pregabaline and morphine and other meds . It makes u feel like crap. 😃

It's not exactly fun is it Debbs73? I usually try to stay cheerful and positive but every once in a while it all seems just too much. I also have fibromyalgia (and quite a lot of other things wrong as well) and between the pain and the medication I am permanently tired.