Crps

I have recently been diagnosed with CRPS which was caused by surgery , my doctor put me on many painkillers that didn't work so now on morphine . my doctor started me on 20 mg a day I'm now on 160mg a day and still in pain . my doctor now tells me I'm addicted to the morphine she wants me to now reduce it without having anything to replace it. what can I do ?

15 Replies

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  • This is difficult as morphine is known to be a very strong drug. Have you been recommended Tramadol, that should be the next one down from morphine. Wish you luck with it.

  • I've already tried tram tramadol but thank you .

  • Hi there sounds familiar .

    I was placed on large doses of morphine and gabapentine.I have CRPS

    In all 4 extremities . I made a decision one day to get off all these drugs . which ended up taking a year.

    I have had this sInce 1999 and from my studies find there are no pain relief drugs for the nervous system. I got fed up feeling tired sick confused etc while still in pain . I have now been drug free for 6 years. here's where I am in life

    I still have extreme pain , flair ups muscle twisting spasms etc but have a clear mind and can cope better. alot of

    This condition becomes worse through

    Our reactions to it.and for me I now fully understand that my thoughts are much more rational with no medication . Being able to understand clearly what my triggers are what my limitations are etc . I don't have a rosey life but accepting there is no cure yet and understanding my own health better

    Is so much easier with a clear mind.

    I'm not suggesting this will work for everyone but I'm no worse pain wise than before but I'm not drugged up all the time .

    If there is anything I can help with let me know.

    I'm not aware of things like your time of diagnosis treatments so far etc

    Here to help

    Dave

  • Thank you for your reply . 2yrs 6 months ago I had bursitis in my left hip/leg I had 5 cortisone injections none worked . I had surgery in January this year and my situation just got worse . They removed the bursa , shaved my hip and thigh bone , repaired a cartledge in my groin and a tear in my flesh on my hip joint . I could hardly walk after and was in so much pain .my surgeon /consultant was gobsmacked . He said he wished he didn't do the operation because of my condition . In August I had another procedure done , they injected into the same area as the first operation . I was then diagnosed with CRPS . which was caused by the surgery . I'm seeing a pain specialist on the 13th December .

  • Hi think you are very early with your CRPS diagnoses

    I won't lie you have a long journey.

    The first step for me was acceptance of my condition

    This took me a number of years, it is so difficult and crazy painful so I do understand. I would suggest talking to as many people

    With CRPS and as many experts as possible.

    Try to find out what triggers flair ups etc .

    I appreciate you are having a bad time but realising you are not alone may help.

    I am happy to help where I can.

    I am currently training as an expert pain patient and will soon be a tutor for chronic pain patients.

    Thank you

    Dave

  • I do feel a loan I don't go out on my own just because I can't remember very far , if I do go out its usually on a weekend with my husband or my sister in law then I need my wheelchair as walking too much just agrevates my pain. I do have my dog food company he is adorable . on top of all this week are having to move as our landlord has given us notice , I really could have done without that .

  • Intrigued by you training to be an 'expert pain patient'. How do you become an expert in chronic pain??

    x

  • Hi there

    I have had CRPS for 17 years in all limbs. so very severe. if you imagine the amount of specialist you see ,,most of them understand what is causing pain but sometimes when someone who doesn't have chronic pain says they no how you feel

    It can sometimes feel a bit patronising.

    I attend a group run by people with all different types of chronic pain . and am currently training to be a tutor of these groups.

    Hope this helps

    Cheers dave

  • Yes I understand but only as a carer for over 20 yrs. I see the other side of chronic pain.

    So...what do you tutor?? All that the pain clinic teaches us? Which is excellent! Coping. Pacing. Pain management? Anger. Blame. Acceptance. The last one is optional extra

    x

  • The courses are predominantly run as you say and are NHS based so for me are a little scripted. I just find it easier to listen to someone who has chronic pain or in your case a carer than someone who doesn't really understand. With chronic pain everyone is different and use various methods to cope so it is always interesting to here new techniques. I have attended lots of pain groups and find talking to others who have a range of problems helps . the only way these groups survive is if people become tutors and volunteer. for me it is giving me something to focus on and helping others is always a good thing.

    If you go back 10 or 20 years you will now be coping differently while caring I now it took me a while to cope .for me boredom is a trigger feeling useless as I can't do my old job , so this is a way of helping with that.

    Hope this helps

    Dave

  • Yes it is a way to both help others and you. Good on you.

    One of the biggest problems I hear is people who say what they used to have. Dancer, in the gym, walker or just playing with the kids. That was past and that's where it must stay. That life has gone and that is where acceptance, hopefully, comes.in. Adapt to what you have now and it is hard cos we all want to 'do' and be like 'normal' people.

    x

  • Your so right

    I want to advance to set up my own group because there are so many talented people with chronic pain who want to do something but don't know what. for me it's about adapting and all the other things you mention.

    I listened to a very intelligent guy the other day telling me about his incredible life.

    I seen him smile whilst reminiscing and asked if he was in pain

    Just listening to his amazing past made him forget if that makes sense.

    A bit of diversion therapy for him .

    I am currently working with around 4 or 5 people to set up a company where we can utilise each other skills .

    Should be up and running early 2017.

    When I mentioned doing this I could have had a group of 20 lol so many people with something to offer.

  • Good for you and wish you every success. Let me know how you get on.

    My husband was severely injured while on active duty in the Royal Navy a long time ago. Get him on HMS Ark Royal stories and he smiles and forgets pain too!! Everyone listening goes to sleep!!

    x

  • Thanks Dave that's good to know .

  • Look up ketamine injection therapy. It is new but may help wuth crps.

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