Cannot Handle the Pain any longer : Hi, I am... - Pain Concern

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Cannot Handle the Pain any longer

Mel-B profile image
16 Replies

Hi, I am really struggling to cope with the constant chronic pain in my lower back, hips & pelvis from DDD. I am drugged up to the eyeballs but nothing is working....I don't know who to turn to for help....I feel I can't carry on any longer...

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Mel-B profile image
Mel-B
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16 Replies
Steve49 profile image
Steve49

Hi.

I'm really sorry that things aren't great at the moment.

Yes I'm drugged upto the eye balls as well due to my Chronic Pain which is 24/7.

Everyday is very very hard, but this Pain is not going to beat/get me down.

The Pain is no longer welcome in my body.

I'm the "Boss"

"Don't Don't" give up.

"Please Please"

Let me "HELP"

Steve.

Mel-B profile image
Mel-B in reply toSteve49

Hi Steve, thank you for your reply. I was feeling rather desperate. Just sometimes it gets too much as its never ending.

I hope you are coping?

Mel Xx

Steve49 profile image
Steve49 in reply toMel-B

Hi.

Thanks for your reply, yes I am coping well.

It seems to be one thing after another but it "Won't Win"

Please don't feel desperate !!!!

Life's to short for that !!!

"Please Please" contact me if everthing is getting too much.

I'm very happy in talking things through if that would "help"

I'm here as & when it will help you, please let me know as I have got "big shoulders"

Steve.

Mel-B profile image
Mel-B in reply toSteve49

Hi, I thought I had replied to you so please accept my apologises!

Thank you so much for your kind words. I feel a big better today....hope you're doing ok?

Mel Xx

Steve49 profile image
Steve49 in reply toMel-B

Hi.

Don't Worry that's fine !!!

That's great that you are feeling better.

Please let me if things get bad !!!

I'm here anytime you need a "shoulder"

I had major stomarch surgery in 2014 that has caused more probs.

There was no chose really as I was siting on a "Ticking Time Bomb"

Never mind we need to keep "smiling" as this is the best "medicine"

Steve.

missyw23 profile image
missyw23

Hey I reallyfeel foryou I have same symptoms and I'm struggling to cope what is DDD I have pid x

Mel-B profile image
Mel-B in reply tomissyw23

Hi there,

DDD is degenerative disc disease....it's just bloody agony!!!

What is pid?

Mel Xx

morphalot profile image
morphalot in reply toMel-B

Hi Mel - I have DDD amongst other things and am in agony most days. I was advised to cut down my medication after having a spinal implant so I did. However the implant only works on the lower part of the spine so I'm thinking i might have to go back onto medication for the upper spine in which case I might as well have the implant removed a it was inserted to try to get rid of the pain and enable me to cut down on medication. Do you have any advice??

Scotspain profile image
Scotspain

Hey hope you're ok get on your gp and get more painkillers i know how u feel im on 240mg a day of oxycontin for ddd plus valium pregabalin etc and get so down somedays but good days balance out the bad i try to keep active and stay working had to change to a support worker for people with brain injuries after working on oil rigs for year's till pain got too bad now i make crap money but job is lighter n rewarding ill maybe manage to work anoth er 5 yrs way pain is increasing im only 40 but want to live ! Work is important to me but pain takes control somedays its hard message me anytime your down i speak too much but listen well too lol take care sp .

Mel-B profile image
Mel-B

Thank you for your post. I'm speaking with my GP on Wednesday about my medication. I was just having a bad day. I too had to give up a job I loved. Now only working 3 days a week but still feel so tired.

Thank you so much for your support, hope you are ok?

Mel xx

MarsBarKid profile image
MarsBarKid

Hi what pain meds are you on? And one thing, do you have trouble at the dentist say - g and he injects and leaves you then back and starts and pain ? May well be a fast metabolizer. Dentist is way to find out. My face never froze ever with locals injections. Used to hate to go until found this out as pain then he would give another local and so on not nice ended up with sore gums from all the injections too. Dentist told me what was wrong. Since then no trouble. I do however find that all meds work a bit faster than usual. CAnt take any generics in particular not an anti biotic as these are too weak. Shows up on me.

Anyway just a thought as pain is shocking and if not treated by meds prescribed could be the reason. Eat em up too fast.

I am in pain constantly right now as in need of hip and knee replacements waited 11months and only 1 to go and then will hopefully get an op. But meanwhile tried I think every pain med. Down to plain codeine now. Heads fine. Pain just about bearable but down to point wonder if I can last out.

Hugs and dont let the bastards get you down! No one knows until got it bad 24/7 I at least get some release if sit. But have to move and sleep is hard to come by.

missyw23 profile image
missyw23 in reply toMarsBarKid

Hey your condition sounds hard bless you pid is pelvic inflammatory disease it makes life a living hell its agony too x

lotsoissues profile image
lotsoissues

I thought I had pid too at one point but later diagnosed with psoriatic spondylitis. Is there a possibility that you could see another rheumatologist for a second opinion?

MarsBarKid profile image
MarsBarKid

I've had new X rays today for a private surgeon to view. Last ones showed needed hip replacement didnt mention knee but the X Ray showed bad and in need of replacement I was told by physio when he reviewed it.

Anyway no way to see a Rheumatologist I was told longer waiting list than I have waited to see a surgeon. They say our medical hospital system is broken. I'm close to end of year long wait for my BUPA to kick in.

Looking forward to it not the actual but the outcome. Hopefully pain will diminish when I can walk and having sat down, get up without first talking myself into it.

Hugs to you all.

Winniepooh1976 profile image
Winniepooh1976

I know how you feel I feel the same on days when there is no end in site. When the pain gets on top off you, and you are so tired you cannot think straight. I try distraction reading, colouring , or box set binging. I always try to remind myself I am allowed bad days, but that good days will happen too. I do what I can but do not boom and bust pace is important to ensure your bad days are as few as possible. Good luck hope things get better for you.

suerosie profile image
suerosie

Hi everyone. Just briefly, my problems started with gall stones, and acute pancreatitis, which became chronic. I have had 9 major abdominal op, including a total pancreatectomy, which has left me with diabetes requiring insulin. The ops have left me with chronic pain from ? nerve damage/adhesions. I have Fentanyl patches / Oxynorm / Lyrica and Duloxetine, and like some of you i feel drowsy but still in pain, and very low. I'm under the care of pain consultant, who doesn't want to do anything else. I don't know which way to turn. I often feel that people dont believe how bad things are.

Sue.

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