Hypermobility sucks! Someone help!

[Archerchick]

So i suffer from Joint hypermobility syndrome where all of my joints constantly click and give way. At the moment i am struggling withthe pain and i really need some help. I cant keep taking tablets because I'mbecoming immune to them. Someone help!!

[nayjay]

I really wish I could say something that could help make this better for you, I too suffer with a lot of pain from Eds- and primarily my hyper mobile joints. I have found Tablets don't work because of the resilience that I've built and I'm stuck wondering where to go from here- at 1.40am because I feel lost and at the end of my teather - people have recommended tens machines, targeted exercise and meditation and mindfulness- I don't know if you've tried the above, but I can't quit wishing it would go away. I guess the point of my long ramble (sorry) is that I can empathise with where you are at right now, I'm really sorry I have no great suggestions, but I hope it helps to know you aren't alone with this, and if there is anything I can help with- let me know x

[Hidden]

I totally understand as I have eds hypermobility too. Could you get a referral to physio therapy and the pain clinic? They could help you with alternative painmanagement methodes. They have been very helpful to me. I try to use my strongest medications only on my worst days so my body does not get used to it. Hope you find a solution that works for you soon. Hugs xx

[Archerchick in reply to Hidden]

I hope so too. Thank you x

[johnsmith]

Tablets kill pain. Tablets cannot give you the muscle control skills that are needed in order to move better and reduce some of the symptoms.

You need to network in your local area to find someone who can help you develop the fine tuning of muscle control. It is unfortunate that fine tuning muscle control skills require guidance from teachers who can see what you are doing; see the errors you are making and give you the guidance that you need to move better.

As I do not know your local area I cannot give any guidance on who to see.

[Megan75]

Hi

You could try a slow release anti- inflammatory or joint splints for bad days. Yoga, Pilates and hydrotherapy are all helpful too.

Try the EDS helpline for further guidance too xx

Megan

[Susan1-2]

I was diagnosed with JHS. I do Reformer Pilates and yoga. It helps more than any medication. I also bought a 4 inch memory foam topper for my bed to keep the pressure off my joints.