BBC NEWS

[Bevvy]

Just watching bbc news talking about chronic pain and possible new meds for it.

[Bananas5]

Nothing on their pages so any more you can tell us?

Pat x

[Bevvy in reply to Bananas5]

Not really been on the TV news

[Bananas5]

Yes got that but what about these 'new' meds?

Or were they just waffling as usual?

x

[Bevvy]

Seem to be developed something due to working with people who feel 'no pain' a very rare and serious condition. Who knows when some thing will be available though!

Some. Idiot contacted news stating people should not take any pain meds because they cause pain...... No idea what I go through each day! Although (very recently) am trying to reduce amount of meds taken each time.

[Bananas5]

My nephew is a paraplegic and has no feeling chest down. Big problem when he injures himself cos he doesn't know.

Why do they let these uneducated idiots loose on the phone? Pain relief is good but you have to remember all it does, hopefully, is give a little respite. All it does is mask the condition. Too many people when they do get some relief go wild and do everything they used to. No amount of relief can help then.

Golden rule of pacing yourself.

Redue with strict control and never without medical advice

x

[Hidden in reply to Bananas5]

But hard not to "go wild" when you feel good for one day in thirty.

[Bevvy]

Yes and I have exercises from physio that can only do when not too much in pain. Long term they should ease pain if can strengthen muscles...

On TV they interviewed man who got no pain receptors and has some serious additional medical conditions including severe arthritis which he makes worse because feels no pain.

[Hidden in reply to Bevvy]

No, he had rheumatoid arthritis because he injured himself so much as a child when he went mad doing daft things and injuring himself. Hence the joints are damaged with arthritis now!

[Bananas5]

Lovely physios where you always seem to be worse than when you started! But yes do agree long term relief.

Which is worse...no pain receptors or ones that never switch off?

One for a good discussion.

x

[Hidden]

It was Breakfast wasn't it on BBC 1? From what I gathered it was a new treatment, not meds, based on someone born without the ability to feel pain. So I'm guessing it will be something to do with switching off areas of the brain which control pain.

I think I'd rather suffer the pain than start messing about with areas of the brain don't you?

[Artroc56]

Quite a few other sources have a similar story... independent.co.uk/life-styl...

[AmyPS]

I saw this on the news yesterday - interesting - it's a wait and see what happens.

[talgarth]

Not specific to the article but also on BBC news yesterday was a man who has/had suffered long term back pain. Luckily for him, he has found that 'pacing' etc (learnt at a pain management course) allows him to fully control his pain (to the extent that he no longer calls his pain 'chronic' but 'present') The overall implication expressed was that the magic cure had been found to eliminate back pain. Well, maybe for him, and the best of luck, but it certainly has not for me and I'm sure many, many others. I wish the BBC would cease 'siding' with government policy and broadcast a true reflection of the majority of sufferers.

[Bevvy]

Yes.

I am aware of certain triggers that cause more pain eg standing or walking but am in pain all time anyway and if I don't walk or stand how will I live? Have to stay in bed all the time? Be great if I could stay at home and not work..... But still in pain when on holiday so wouldn't solve issue!

[Bananas5]

Hello Talgarth

BBC have to pick something sensational or shocking. That makes the story not those in the middle.

Having said that i am a huge advocate of the coping strategy. It makes sense.

You do have to change completely he way you once did things That is damned hard. Almost unlearn everything you have done previously and start again. To those born with a chronic illness or disability they know no other way. Some say it is harder to acquire an injury mid life when you start all over again.

Pacing yourself is golden rule number one from pain management and yes it does work.

x