I want to say that so much damage is done when the professionals do not listen, because the medical profession is riddled with gossip, it seems to function on it , instead of actually listening and only take in the relevant points.
Trouble is when so much is riding on clinical decisions reached, it can make and play havoc on ego's for pompous consultant's and yes us patient's alike.
I've been trying hard to get help for my problems and was and am worried that before a problem is obvious to the professionals it may be too late for the patient, instead of intervening and stopping it getting to the point of no return.
I've been bombarding anyone who may be interested about my neck and the area between my shoulders, but because of the disability issue, and possible wrong diagnosis, that refusing to shift their point of view can make the problem so much worse.
I admit for the patient who may have so many other issues around psychological problems, that for the doctors it can make reaching a conclusive diagnosis so much harder.
But what comes first ? the psychological damage by not being believed, or damage done by the coping with a disability or the hiding off it for whatever reason can cause so much more damage, especially if there is a digging in of the heels, by al concerned.
And with so much riding on clinical assessments for the Hospital, (and the patient) that it can and does cause psychological problems for the doctors as well .
Every patient I think deals and copes with their disabilities differently, and I think doctors should know that, that some patient's do not show something outwardly, does not mean to say that they have not been living and coping with their disability in their own way and in silence, I say this because a physiotherapist said to me recently that I could not possibly have been living with my disability for 27 years.
His statement to me made me realise that just how much of a problem there is with perception in the minds of the professionals, and that what you say as a patient has to be backed up with something outward that just because you made it to their door, does not mean that there is no serious problem, especially with pain, for with pain you have to live with it, and you devise coping mechanism's so that you don't bother people with it, for nothing causes so much problems for someone than being constantly told by someone that they are in a lot of pain, because what can you say to someone, after the third time.
So needless to say I'm a bit peeved with the whole issue, and I accept there may be reasons for doctors behaviour that I'm not aware of, but hey' there are things I know that I do not put down here, as I have to go to the same people for treatment, and I know how difficult and hard it's been to get to where I am now, as getting good pain management is such a pain, Pun implied.