I've lived with pain now for about 27 years, and in that time you begin to gather information around your pain, as pain is a sure fire way of making you learn fast, but I know that there is one thing that you can never truly learn completely and that is what exactly you are doing to makes it so sore and you learn and try everything, like reliving your movements, going over everything you did just before it got so worse.
So by the time you arrive at your wit's end, you can safely say you have tried everything you can think of, and by the time you arrive at your doctors, you have enough evidence that you hope they can diagnose your pain.
But what if after 10 years they have given you so many test's and scan's and blood test's ,even Cancer treatment, but still the pain is there, but the one test that has never been run, (nerve conduction) even though you have been telling them till you are blue in the face , and on the day before the test, the doctor phones you and cancel's it .
What if the advice you are given by your GP' and your consultant and that is to move more, but everything you know and learnt through years of pain, is contrary to this, so you get out of the chair more and you move more and more and the pain is getting so bad that your experiencing shooting pains going right into your brain at the temples, just like the ones in the leg's but more frightening, obviously.
You have pleaded with your GP in the past to do something, you ask them to allow you to go to another hospital for the scan, only to be told that the hospital who scanned you before is the best in the country, and that too many scan and you risk Cancer, and goes on prescribing you more and more psychological medicines.
Still the pain is getting worse especially neck and temples, then the final insult, oh your pain is worse because you have been reducing your pain medication by 5mls , it couldn't possibly be that the advice I've been given is wrong, it couldn't possibly be that I've been ignored in everything I've been telling them about angles and levels and pressure on my nervous system is now possibly unbearable, and still they refuse to accept what I'm telling them "now" and have been for 15 years, or could it be they rely too much on machines, and have stopped listening to patients, and only believe patients when the diagnosis is patently obvious and that a child could diagnose it, but at a fraction of the cost , but for some reason do not want to have to listen because it contradicts the big cheese, you know those that are paid so much that they now live in the ether, and that patients are never to be believed unless by court order .
So what advice should I get on here can't possibly be any worse than from those too highly paid consultant's.
But maybe I should stay silent because of fear from being seen as a liar and spoil any chance I have of being treated with fairness, because one shouldn't complain about those who you rely for care are and are
in the position of just what treatment you can hope to receive at their hands , so God Forbid you have the audacity by complaining and may rock the boat by your complaining.
This is nothing personal against my GP only the collective clinical decisions , in what it conveys to me the patient.