Doctor's Advice, how often so far off the mark.

I've lived with pain now for about 27 years, and in that time you begin to gather information around your pain, as pain is a sure fire way of making you learn fast, but I know that there is one thing that you can never truly learn completely and that is what exactly you are doing to makes it so sore and you learn and try everything, like reliving your movements, going over everything you did just before it got so worse.

So by the time you arrive at your wit's end, you can safely say you have tried everything you can think of, and by the time you arrive at your doctors, you have enough evidence that you hope they can diagnose your pain.

But what if after 10 years they have given you so many test's and scan's and blood test's ,even Cancer treatment, but still the pain is there, but the one test that has never been run, (nerve conduction) even though you have been telling them till you are blue in the face , and on the day before the test, the doctor phones you and cancel's it .

What if the advice you are given by your GP' and your consultant and that is to move more, but everything you know and learnt through years of pain, is contrary to this, so you get out of the chair more and you move more and more and the pain is getting so bad that your experiencing shooting pains going right into your brain at the temples, just like the ones in the leg's but more frightening, obviously.

You have pleaded with your GP in the past to do something, you ask them to allow you to go to another hospital for the scan, only to be told that the hospital who scanned you before is the best in the country, and that too many scan and you risk Cancer, and goes on prescribing you more and more psychological medicines.

Still the pain is getting worse especially neck and temples, then the final insult, oh your pain is worse because you have been reducing your pain medication by 5mls , it couldn't possibly be that the advice I've been given is wrong, it couldn't possibly be that I've been ignored in everything I've been telling them about angles and levels and pressure on my nervous system is now possibly unbearable, and still they refuse to accept what I'm telling them "now" and have been for 15 years, or could it be they rely too much on machines, and have stopped listening to patients, and only believe patients when the diagnosis is patently obvious and that a child could diagnose it, but at a fraction of the cost , but for some reason do not want to have to listen because it contradicts the big cheese, you know those that are paid so much that they now live in the ether, and that patients are never to be believed unless by court order .

So what advice should I get on here can't possibly be any worse than from those too highly paid consultant's.

But maybe I should stay silent because of fear from being seen as a liar and spoil any chance I have of being treated with fairness, because one shouldn't complain about those who you rely for care are and are

in the position of just what treatment you can hope to receive at their hands , so God Forbid you have the audacity by complaining and may rock the boat by your complaining.

This is nothing personal against my GP only the collective clinical decisions , in what it conveys to me the patient.

[nedd]

You should print this off and send it to all and sundry, you should hand every health professional from the receptionists upward a copy rolled up with a pink bow round it.

And a wink,

And a parting shot of

Fail to read this at your shame.

It packs a powerful punch.

Wishing you strength and well being.

Ned

[Hidden]

Hi,

I agree with so much of what you write, in that medics ALWAYS think they know best because their training gears them up to HAVE to know what is wrong with the patient - to come up with a diagnosis (even if it may be the wrong one). I have come across some really good medics as well, and most are good some of the time, but I have also had the same kinds of experience as you, wherein I say what is wrong, they say no, then if I am lucky I find another medic who believes me, prescribe what I think I needed in the first place and miraculously the thing (often an infection) is sorted. Well that's my rant too.

So now, about your pain. What do YOU think it is? I was about to give you my ideas - but then realised I would be doing exactly what the medics have done!

Sue

[frame1]

So true, enough said!

[Hidden]

I agree with Nedd print it off and take it with you .

I wrote something similar to my pain consultant and he had to read it in front of me I ended my letter saying how cruel it is not to be listened to and it worked I got what I'd been asking for for years (amputation) Im still recovering but things are looking good.

hope you get what you need and remember you are not alone there are lots of people here offering their support and experiences.

Fiona

[Hidden in reply to Hidden]

Fiona me Darling, my apologies about not replying sooner . I was so annoyed with myself after reading your reply post, Hell mine is only pain and I'm an expert in that field, but your loss of your limb well that's something else, you never mentioned was it arm or leg , I bet you have a story to tell, so please excuse my rudeness and maybe tell your story , "The Journey" if you like, because you must have been through hell before you came to the conclusion about having your limb removed, I'm sure a lot of people on here would be interested to hear more' if you want to tell it, that is. best Alex

[Hidden in reply to Hidden]

Hi Alexander

Its my left leg I finally got shut of I suffer(ed) from RSD or CRPS or whatever its called this week.

As for writing "The Journey)I'm not sure where to start, probably back in 2000 when i got bitten by a mosquito, and no I'm not joking.

My husband agrees with you and has offered to help me ,I am afraid of sounding like a whinger though and that is one thing I hate.

Watch this space as they say one day i will get round to it orbe pushed into it more likely.

Wishing you all that you need and if possible at least one pain free day.Fiona

[nedd]

Wishing you well fvee.

Sometimes the powers that be get a bit of a shock when they do listen.

I attended an oncology clinic with small son every week for blood tests.

And the consultant was amazed that the most stressful thing for the parents was all the waiting about. In the end I learnt to take bloods at home and arrive clutching a bottle.

Even then it was goodby to Wednesday mornings.

[johnsmith]

Try the Alexander Technique. See a McTimony Chiropractor. Have a go at yoga. Learn meditation and mindfulness from a Buddhist monk.

The medical profession know nothing about pain caused by muscular problems. This is not a subject that you can learn from lectures or by reading medical reports. The complementary medical therapists have a hands on approach that enables them to find things that do not show up in blood tests, X-rays or MRI scans.

The complementary medical therapists often use their hands to feel where muscle is missbehaving and work to try and get the muscle to behave better.

hope this helps

[mitziblue]

Sweetheart I'm so sorry for all you have been and are going through!!! Have you been tested for fibromyalgia? xxxx Mitzi