OK so doctor who don't knew rang me 20 min ago...

[louiseamos]

Told me haven't a.s..which don't knew if up set or really confused..I've the very exact Simpton s since was 23????? So what's wrong!!!told him spine guy said I needed a operation ,,and had bad arthritis in lower back!!this doctor said bit only bit of arthritis!!and can't understand were pains from!!!I can hardly walk!!legs could chop off!!he said theirs 3 padges here said want a copy!!said need to see a reumo!!!told him it can't be in my head!!why did Newcastle said bad at bottom spine..I asked why or did it show why my right leg feels ouuta joint he said no..bits and bobs up my spine????!!!I feel mad really!!!what's wrong he said because had pain most my adult life could have fibo??? Tired isn't word!!confused help

[earthwitch]

Sounds like you do either need to see the rheumatologist and have the MRI explained to you properly, or get a second opinion. Being given a diagnosis over the phone really isn't good enough.

Have you had any contact with the National Ankylosing Spondylitis Society? Its nass.co.uk They actually have a free helpline, and it might be worth you phoning them to get advice about what to do next.

[louiseamos in reply to earthwitch]

Hi earthwitch!!!yen 3 pages long he said it was!!was on phone to me for like 5 minutes!!! More confused!!!this spine..leg pain isn't in my head!!x

[louiseamos in reply to earthwitch]

Hi earthwitch..I rang them 2 week ago!!told me they would send info out to me nothing!!!!!does fibro really give simptons of a.s..ribb stiffness etc?????I am confused stressed,, don't knew this rumo guy???no ones hurd of him its good 2 hour away???!!I need of these morpie!!a must beennthese now 3 year and bit!!good job didn't take pain meds when in 20 s...or ????just took paractmols and nurifin!!x

[Hidden]

Louise, I am sorry you are so upset but there are two crucial giveaways here: "the doctor didn't know you", and "it was a telephone consultation". I am presuming s/he is a GP?My guess is he just scanned the front page of your notes and was not interested in listening to a long and complex history. Bad practice. If you have a regular GP you trust go back to them. Newcastle is a good hospital and if you have a firm diagnosis in writing and you trusted them don't doubt them. It is also true that pain lasting over 6 months is chronic pain state (there are several subdivisions including fibro) but s/he couldn't know that from that phone call. So your main condition may have led to a pain one too. With a diagnosis you can get better meds and pain rehab, which really help. Good luck.

[louiseamos in reply to Hidden]

Hi Bowbells...no this scan had...physio saw me has turned down a operation after LST ..well left worse pain..sent me doctor physio said he puts her job on I've a.s and every simpton.. From stiff ribbs..can't breath in..lower back from I was 23.. Got little better when got 30,, but lower worse after op!!!!then middle up..also joint pain!!!doctor rang me said oh says bits and bobs their???????3 padges long!!!! Don't have a.s...OK so what's wrong!!!!Newcastle not going till end September!!!! Guess what my sciatica is coming back!!!if like last time god can't copexxxso more confused x

[Hidden in reply to louiseamos]

Dear Louise, I wasn't saying. I don't believe you, I absolutely do! All of it! I just made a suggestion as to why it might be so bad now, but obviously you must be seen by a consultant. Trust me things can be done to help you be more comfortable, but the waiting is very frustrating, for all of us. I do hope you see some one good and feel better soon. Remember: GPs have no training in pain, and I doubt in the complex condition you describe.

[Hidden]

PS chronic pain does generate pain for which there is no obvious cause. There are books on the brain and nervous system that explain this. Google Institute for Chronic Pain

[mitziblue]

I agree with earthwitch you need an MRI to see what's going on. It could be you have fibromyalgia. I have ruptured disks in my back and have fibro too. Sound's like you may need to change doctors as well. Your doctor should have tested you for fibro if he thinks it's a possibly. You need as we all do a doctor that's compassionate and has a good bedside manner. Hope you find out something soon sweetheart and find some relief!!! xxx Mitzi

[louiseamos in reply to mitziblue]

Hi mitziblue..feels like we are just nothing to them he rang at 20 to 8 at night doctors close at 530!! He should of went over my notes before ringing me!!he did also say a reumo should of put scans forward has they no what looking for!!!think I will ring Newcastle Monday and begg to be seen sooner..he was sent to see me end this month!!but but me forward!!!! So tired all time!!xxxpain will be end of me..my dad.brother so on all have..bad backs

[mitziblue in reply to louiseamos]

Hope you get in soon sweetheart!!! xxx

[johnsmith]

Muscle action can cause pain. Pain caused by muscle action will not show up on a MRI scan. You need the help from Yoga teachers, Alexander Teachers, chiropractors and Massage Therapists to deal with this sort of pain.

Hope this helps

[louiseamos in reply to johnsmith]

Thank you looking in too it

[Hidden]

John is right I use a swiss ball which is cheap to buy ask your physio for some exercises to do it helps for muscle pain . Take care

[louiseamos in reply to Hidden]

Marshall71,, physio wouldntb touch me said he but he's job on I had a,s!!so have to go on 3;4 month wait list again!!!

[Hidden]

Yes sorry just read your first post sorry your in such pain