I am presumed to have atypical, steroid-responsive polymyalgia rheumatica, t am currently supposed to be on 10mg prednisolone daily, having had a week of 10mg and 12.5mg alternate days after two weeks on 15mg, . My GP is anxious that I reduce quickly. My symptoms were initially very responsive to steroids, but I've been having a lot of pain on 10mg. This morning I could hardly get out of bed and walk.
Yesterday I saw the rheumatologist for the first time. I had blood tests taken (previous ones were negative), and various x-rays. She didn't even ask about my steroid use and gave no advice. I see her again in 6 weeks.
Since I have been on 10mg, the pain - and now disability - has been severe. My GP is away, but I have asked for a phone call. I hope to be allowed 1-2 weeks on 15mg before reducing, I've never had so much pain from it.
I have to go out shortly and am really struggling. Late afternoon I have another vet appointment, then tomorrow little Twix is castrated.
Wow - I can't remember this amount of musculo-skeletal pain before. My typing is becoming worse by the minute!
Ann