what a rollercoaster the last two months have been, scan came back clear in October however ca125 continued to rise and 2 weeks ago I ended up back on hospital to get 6 litres of fluid drained. When I was admitted I was told my liver was enlarged and my lft's were all over the place and I had a uti. Fluid was sent off for cytology and the 3 days after being discharged I was called to come in and see my onc. Was given the dreaded news that I would have to start 2nd line chemo, carboplatin and gemcitibine.
I was due to have chemo yesterday but postponed it til tomorrow. I am not sure if I am in denial but have been very anxious as I have been having a hard time getting answers from the hospital. It's been very frustrating. The whole week I have been waiting for people to call me back but no joy. Today I finally have an appointment with my onc. Am I being silly? I want to know where my recurrence is before I pump my body with chemo, I want to know what the cytology results are, I want to know why I have not had a scan. I was told a couple of months ago that they would not start chemo if just my ca125 was rising but here I am being told to start again just cos I had ascites, I am worried that they are following hospital protocol and not investigating anything else before pumping my body with chemo drugs. I am frightened and having a very hard time dealing with the fact that it's come back. My onc has told me that as i only finished first line chemo in April my remission will more than likely be shorter this time round, I am scared that this is going to be the rest of my life. Everyone who has posted on this fantastic website has been my lifeline over the last year and a half, it seems to be the only place I get answers and feel you all know what I am going through. I would love to hear from anyone who has had multiple recurrences and how long the gaps between treatment were. Would love to hear from anyone who has had carboplatin and gemcitibine and what their experiences were and do you lose your hair with this combo. I would just like someone to tell me that I am not going mad and it is normal to ask the questions I will be asking my onc.
Wishing you all a healthy new year and a wonderful Christmas and a huge thank you to each and everyone of you, so sorry I have rambled but I feel so much better for having gotten things off my chest