There was a discussion recently when quite a few Members said they'd like to link up with people face-to-face but there is nothing in their area.
A couple of us have launched ovarian cancer support groups this year. Gill (MidwifeGill) has established one in East Berkshire, and ours in Cardiff will have its inaugural meeting on Wednesday 27 March. By coincidence both groups will continue to meet on the last Wednesday of each month.
I thought it might be helpful to start a discussion about what support you have in your area, what you like or would like, what you don't like or wouldn't like, and what you'd really want to get out of a support group.
I also thought it might be a source of information for anyone who's motivated to start something of their own. It can be quite a daunting experience, I was lucky enough to meet Chris (Darragh) who lives near me so it's been very much a joint effort and a lot of fun too.
Gill (MidwifeGill) is incredibly IT savvy and has started her own blog on her Cancer Journey and has set up a web site to advertise her East Berkshire Support Group. I'd love to be able to do the same but my IT skills aren't that developed yet and I'll have to do a bit of research to find out how to go about this.
In googling 'support groups' I discovered Macmillan will provide help, training and courses, and financial support to start up local cancer support groups. This is really helpful as it will provide networking opportunities to share good practice. You can find out more at:
Chris and I will be promoting our support group throughout Ovarian Cancer Month at our local cancer centre. They've agreed that we can have a static display and a table in the waiting room at each of the Ovarian Cancer follow-up clinics on Tuesdays and Thursdays. We'll be taking our interactive demonstration kit along to encourage more women to use the Ovacome site but it's also a great opportunity to tell them about the new support group.
It's funny to think isn't it that it can be very lonely having Ovarian Cancer and yet when we're sitting in the local hospital waiting for appointments we're all together but just not talking to one another. I'm really hoping our stall in the Velindre will get us talking and meeting one another for support, and attracting new members to the Ovacome friendship circle.
Please use this blog to talk about support groups - even if you don't have one yet. It would be great to pool ideas.